- Why weren’t my concerns/questions answered earlier?!?
- Why did the Dr. cancel on MONDAY, the day before my procedure? Did he not know previously about the allergy? Why not? I definitely called enough times…why was this not communicated to him
- Are there not standing orders/a protocol for what to do with patients with contrast allergies? I know our clinic does…
- Why didn’t my Dr. write an order? It was discussed with him and his nurse (did she not communicate with him) at least 3 times before he went OOT? There were 28 days between my apt with my Dr. and the procedure…plenty of time to clear up confusions (or plan an alternative plan) long before the day before!
- Because of the mix up, I now have to
- wait another month for my procedure, prolonging my anxieties
- pay some out of pocket-our insurance in 2008 would have covered the entire procedure
- Now I am concerned about the procedure itself-
- One Dr. seems very concerned…to the point he refused to do the procedure
- Why the discrepancy? Is this really safe? Nurse said that the Dr. wasn’t willing to do it because of the allergy and that “this could kill me” (yes, she REALLY said that-wtf?!)
- Is Femara+Trigger shot SAFE with not knowing for sure that my tubes are/are not blocked (esp with my endo)?
Tuesday, December 30, 2008
Wednesday, December 24, 2008
I started my Femara yesterday. I had some bloodwork and an ultrasound done on Tuesday. My cyst has grown another cm since last time...now it's 3.6*3.5. Lovely. But, we are forging ahead with the plan. We'll see how it goes! Here's the Femara protocol:
Femara, 2 a day for 5 days
On Tuesday (Dec 30th) I'm having an HSG exam (flushing of my tubes to see if they are blocked)
On Friday (Jan 2) I'll go in to have more bloodwork and a US
Then, they'll let me know when to take my trigger shot (forgot the name of it)
After the trigger shot we'll have timed intercourse (TI) and, have our 2WW!
Yada yada yada..
Aside from the HSG exam, this is what the next two months are looking like. I am VERY nervous about my exam on Tuesday-especially because of my allergies to the IV contrast. They are supposed to give me pre-medications, but, I haven't heard about anything being called in. I guess I'll have to get on to them on Monday. I hope that's long enough for pre-medications to work!
Hope everyone is having a wonderful Christmas!!!
Saturday, December 20, 2008
Speaking of the RE, lots of ponderings this weekend. I'm a little upset there wasn't more explanation when we were there on our last visit. When he spoke of the Femara (Letrozole), my husband and I just thought I'd be taking a pill and we'd be continuing things as usual with it's assistance. When I (FINALLY) got someone from the clinic to call me back about my scheduling question, she started talking about all these appointments for ultrasounds and blood work and then something about trigger shots. Um, okay, that's a lot of missed information there!!! I thought maybe I just missed all of that because of being overwhelmed with the news about my uterus and endometrioma...but, my hubby said he didn't remember any of that either. I mean, I don't think this new information will change my mind about what we are doing...but, I really feel someone needs to sit us down and go over all of this!!!! When I go in for my tests, I will be letting them know I need to have someone lay it all out!
Then, are insurance heartaches. Out with the old....in with the new after the first of the year. Our insurance is changing because my husband's company switched providers. So, we are going from no worries, 100% coverage to a $10K LIFETIME max. Um, that's not a whole lot of money in the medical world! So, now we also need to set up time with the financial counselors at the clinic. Then, we really need to sit down and have a heart to heart about how far we are willing to go with all of this. I've been warned it can become an obsession...I can definitely see that. So, we need to be realistic with ourselves.
Please continue to pray for my friend. She got word that her endo was pretty extensive-on her bowel and bladder...and they want her to start treatments soon. She'll still recovering from her surgery and could really use some good thoughts her way :)
Wednesday, December 17, 2008
I've been feeling pretty good. Random breakthrough pains, and, some breathing issues. I am having a normal charting cycle this month-big sigh of relief there. I'm even having symptoms I haven't had in a while (breast tenderness, PMS, etc). Which, I'm not sure if that's a good or bad thing. Haha. I haven't had those in FOREVER...I also haven't had the bitchin' cramps in a while either. Wondering if everything is just now, finally, getting back into the swing from Lupron? We'll find out next week I suppose. Merry Christmas to me. ;)
I called the RE's office today with some of my questions and to get some logistical assistance. My Day1, when I'm supposed to call and go in on Day 2 or 3, will fall next week sometime I think. I'm going to be OOT Tues-Sun, so, I am hoping they can write some orders I can take anywhere to do. I THINK they are just blood tests...right?!?
So, just wanted to check in. I'm still here!
Also, please pray for a friend of mine that had a laparoscopy today. She had suspected endo and a mass on her ovary. I haven't heard much, but, it was a little worse than they had suspected (I'm guessing the endo); but, they were able to take care of everything without the full laparotomy. :) She has had painful periods ever since I can remember; I just know she'll be so thankful to have had this done today.
Sunday, December 7, 2008
So, how big can an endometrioma get before you have surgery? Aren't they worried about it rupturing? MORE questions I am pondering...making a list for the RE!
Tuesday, December 2, 2008
So, then the kinda okay to worse news...I had an US-and I have a 3.5x2.5 CM on my right ovary (again). If it gets bigger, too big, they'll have to operate again. As long as it doesn't get too big and I'm not dying from pain...it'll be okay there for right now. I'm producing good follicles (I had 11 on the right ovary?). BUT, again, bad news-my ovaries are BOTH glued to my uterus. They aren't supposed to be like that-they are supposed to be floating around freely with space between the ovaries to the uterus. AND, the ovaries are TOUCHING one another from the adhesions too. Great. He said that could be a big problem in the eggs moving from the ovary to the tube to get fertilized. THEN, there is the issue of needing to get my tubes flushed. That needs to happen on days 7-10 of the cycle (which is now, but he's booked-damn)-so, next cycle. The unfortunate thing is that they need to use a similar dye to which I am allergic to. So, I'll be pumped up on steroids and benedryl a few days prior. That part makes me nervous!!!!
So, there ya go. Now that I'm thinking about it, I'm kinda confused. I wonder now that he say my egg count...does he still want me on Femara? Or, are we thinking IVF? towards the end of the appt he said that IVF might be best because of how everything is laid out-and since I'm producing a good many eggs, they'll be easy to get enough to use...
Ugh, I hate when you have questions afterwards.
I almost started crying when he said I had another 'oma (tumor). :( I don't want it back!!!!!!!!! It wasn't there last time they looked (May). But, he's very optimistic, and, it was nice to talk with someone who was really explaining the endo more than I feel my GYN does.
Tuesday, November 25, 2008
Not much else new going on here. I've been pretty stressed out between my crazy cycle, home repairs that are NEVER ending and just busy life as usual. I've had a few mini-meltdowns this week. I just need to chill!!! I wish I could wiggle my nose and everything be done around this house!!!!
Tuesday, November 18, 2008
The anovulatory cycle is a menstrual cycle characterized by varying degrees of menstrual intervals and the absence of ovulation and a luteal phase. In the absence of ovulation, there will be infertility.
::Insert facetious "awesome" here::
So, I had some folks on a chat board look at my chart, and it was almost unanimous that I am heading towards not ovulating this month. It could still happen, but, it's unlikely especially with my normal charting history. The thing that I find so strange about all of this (aside from not ovulating..does that mean no real period?!?!) is that it ALL STARTED with that spotting at the beginning of the month. I was supposed to be having my period, but, it was just spotting for days..and light spotting. So, I'm not sure what all of that means, but, I don't think it's coincidence!
Anovulatory cycles can happen every so often...but, I need to keep my eye on it given my severity of endo. I have an appointment with the RE on Dec 9th, so, I'll definitely be letting him know then. Now, I'm wondering if I'll have a period this time. They say you can bleed, but it's not like a period? I don't really understand that at all. But, I guess we'll see what happens. You never know!
Sunday, November 16, 2008
Hope everyone had a wonderful weekend!
Thursday, November 13, 2008
Friday, November 7, 2008
Wednesday, November 5, 2008
She also did a rub down of my abdominal area, and, it was all stuck again-very tight and not squishy as it should be (I love her, she totally uses language I can relate to!). I could actually feel as she pushed in on my right, my left side pulling. Nice.
I hate to say this, but (knocking on WOOD), I haven't been nearly as nauseated this month. I take comfort in the relief of that symptom!!!!
Saturday, November 1, 2008
Things here have been going okay. I started my period on Tuesday-it was pretty bad that day and it's been rather mild since then. I'm still cramping, and, the cycle is SOOOO off. It's so strange. My temps are fluctuating a lot too. I don't know what that means.
I did call my OBGYN about my possible diaphragm involvement that I am following with my primary care-and HE called me back and left a message on Friday. He said that there really wasn't much we can do right now about the "disseminated" endo, but, I needed to keep track of everything. The only treatments he would have available would be Lupron (been there, done that) and continuous BC, which is obviously not an option right now.
I'm glad that he called me and that he knows what's going on. We'll be going to the RE at the end of the month if this cycle doesn't work out. It'll be nice to talk to him about all that is going on too. I have a feeling he'll have a bit more of insight.
Tuesday, October 28, 2008
Monday, October 27, 2008
Can you tell I'm irritated? And now I'm cramping pretty badly...I'm just going to go to bed and stop pouting. Sorry this is so negative today. :(
Sunday, October 26, 2008
Friday, October 24, 2008
So, on a more (kinda) random note. Has anyone ever heard of this? A friend of mine told me about it-she read about it a book called "A few good eggs". Seems interesting and I thought I'd pass it along for any readers that might find it useful!
Tuesday, October 21, 2008
I should be starting tomorrow-Thurs...ugh...I can feel it coming! I will have to keep an eye on all of my symptoms (as usual).
Sunday, October 19, 2008
This past week I've been pretty crampy and off/on nauseated (as usual). The nausea seems a little better some days, which is nice!
I went to my GI on Friday for a FU. He said that he had exhausted the effort that this could be strictly GI (we already knew it wasn't) and wasn't sure what to do. He wants me to keep trying the zofran with my nausea...I may try again. He also gave me a prescription for something to combine with my nexium; thinking at some point I could continue it and stop the nexium.
He also expressed some concern with a possible pregnancy. He said that he appreciated my desire to have a baby, and that a lot of times that symptoms that I am experiencing can get better with pregnancy. But, a lot of times they don't and can worsen. He wants me to stay in touch and if I need anything to give him a call. He also wants me to talk to my RE when (if) we go next month about my colon involvement of endo and what it would mean during a pregnancy, because he just didn't know. I got pretty upset about this conversation...I'm not sure why. These are definitely things I have thought about, but, I dunno-I was just hoping I was being paranoid or something.
So, anyway, we'll see what's going on this cycle sometime this week. I should start my period by the 23rd/24th...we've done all we can do. It's out of our hands at this point and all we can do is hope and pray.
I've also done a lot of thinking about IVF lately too. I am not convinced that I am made for that journey. We will continue to pray about that. I am just not sure I want to go through all the drugs, all the testing...we'll have to re-vsist that when the time comes and in the meantime I want to arm myself with as much knowledge as possible.
Tuesday, October 7, 2008
Sunday, October 5, 2008
Another thing I don't like...this pain I get sometimes under my right rib (with deep breaths), a bit to the side. Sometimes it goes up my back into my neck area. I've been using an online calendar called fertility friend to help keep up with my cycles. Last month I noted on Cycle Day 10 that I was having "pain with deep breaths". This has happened before-on numerous occasions. Well, the pain with breathing...but not in this particular location. Last month was the first time I noticed it there. So, it's weird...both months it's started around day 9 or 10. Something to keep an eye on. Anyone else ever had this? It's quite uncomfy. I never made notation before; I wonder if it's always cyclical.
Am I a freak or what? I hate having some random, weird pains. :( I feel so alone and stupid sometimes when I have such things going on!
Monday, September 29, 2008
Friday, September 26, 2008
Trying to eat better. We need to start exercising more...I know that'll help with my ills.
Sunday, September 21, 2008
My SIL is 12-13 weeks pregnant and tonight they had a scare. They are not really sure why, but, she was/is bleeding. She is on bed rest tomorrow and will have to go back to a clinic on Tuesday. They had an ultrasound at the ER and the baby was moving around okay and had a good heart beat. She also had good hormone levels. They are out of town because they were at a wedding, so, she's in a strange place with strange doctors she isn't used to. Obviously a stressful time. She has two other children, 5 and 3, both of which are very excited about the new baby. Please pray for this family. I hope they can find some answers and that everything will be okay. We love you guys!!!
Wednesday, September 17, 2008
Wednesday, September 10, 2008
I'm SO tired of the nausea! I know I need to eat better. But, who feels like thinking about and doing all of that when you are so "blech"?!?!
- What are your "diet" tips?
- What changes have you made to your eating habits that has changed your health?
- How can I dwindle meat products and add more veggies and fish?!?! (I'm used to tacos, spaghetti, chicken salads, meatloaf, etc)
- Any recipe ideas?
Monday, September 8, 2008
In our quest for conception, I've just discovered these tools and just wanted to share some FAQ's (from http://www.ovulation-calculator.com/ovulation-tests/opk-faq.htm):
Ovulation Predictor Tests: Frequently Asked QuestionsIf used correctly, ovulation tests are excellent predictors of ovulation. However, in order to detect the LH surge with accuracy, directions must be followed exactly. The most common mistake made with OPKs is generalizing the methods of pregnancy testing to ovulation testing - which leads to errors in use and in the interpretation of results. To get the most out of ovulation testing, read our Ovulation Test FAQ.
Ovulation Test FAQ
Q: How do ovulation tests work?
Ovulation tests detect luteinizing hormone (LH). Just prior to ovulation, women experience a brief surge in luteinizing hormone. Ovulation predictor kits help you pinpoint this surge and anticipate ovulation - your most fertile period in your cycle. Luteinizing hormone, in elevated amounts, is actually the hormone that causes you to ovulate (when the eggs bursts from the ovarian follicle), so that is why lh tests are so effective in anticipating your most fertile time.
Q: How do I interpret results? The same as pregnancy tests?
Ovulation tests function differently than hCG pregnancy tests. A positive result (indicating an LH Surge) is indicated by a test band that is of equal or greater intensity (equal or darker) than the control band. A negative result for the LH Surge is indicated when the test band is of lesser intensity (lighter) than the control band or cannot be seen. Click here to see diagrams of test results.
Q: What is the best time of day to take the ovulation test?
Unlike pregnancy tests, morning (first morning urine) is not the best time to collect samples for ovulation tests, as LH is synthesized in your body early in the morning and will not appear in your urine until the afternoon. The ideal time to test is in the afternoon, around 2pm, though testing may safely take place from 10am to early evening.
Q: Should I take the test the same time every day?
Yes, be sure to test at the same time each day. Also, reduce your liquid intake around 2 hours before testing as a diluted liquid sample can prevent or hinder LH detection.
Q: When should I beginning testing with the ovulation predictor kit?
To determine when to start testing, you must first determine the length of your menstrual cycle. The length of the menstrual cycle is the number of days from the first day of menstrual bleeding to the day before bleeding begins on the next period. Determine the usual length of the menstrual cycle over the last few months. Then, refer to the Cycle Chart to determine on which day of the menstrual cycle to begin testing. Click Here determine when to begin testing?
Q: How long after my LH surge will ovulation take place?
Generally, ovulation will take place 12-48 hours after the LH surge is first detected (using afternoon urine samples), though 36 hours is considered to be the average length of time following the LH surge.
Q: When I get a positive on an ovulation test, when is the best time to have intercourse?
To increase the chance of conception, it is best to have intercourse the day of the LH surge as well as following three days after.
Q: Does the appearance of faint 'test band' indicate an LH surge?
A faint line (or a faint positive test band) does not indicate a positive result for an LH surge. While the presence of a faint line on a pregnancy test may indicate a positive result, a faint line on an OPK is always negative.
Q: Does taking my basal body temperature tell me the same thing as an OPK?
Basal Body Temperature only tells of your LH surge after it is over. That is why the BBT method cannot predict the LH surge. Ovulation tests will tell you - with pinpoint accuracy - when your chances for conception are greatest.
Q: Can OPKs be used as contraception devices?
Ovulation tests are designed to help facilitate pregnancy. They are not recommended for contraception.
Q: Can clomid interfere with test results or cause false positives?
Clomid may cause false positives if you test for ovulation too early in your cycle. Please consult with your doctor about how to use OPKs in conjunction with Clomid - or other fertility and prescription drugs.
Q: Does a light test line and a dark control line indicate a positive result?
Ovulation tests are unlike pregnancy tests - especially when it comes to interpreting results. The results are only positive if the test line is equal to or darker than the control line.
Q: I had a positive result yesterday and today. Does that mean there is something wrong?
Such results may indicate that your the tests detected the LH Surge on the way up and again on the way down.
Q: What if I experience a BBT thermal shift but the ovulation tests failed to detect my LH Surge?It is possible to miss the surge. If you have a test line that is fairly dark one day then very light the next, you may have missed the actual surge. If your thermal shift occurs, you probably ovulated. It may be a good idea to test twice a day when you feel that you are close to ovulating. Another possibility is that you didn't hold your urine long enough (resulting in a diluted sample).
Saturday, September 6, 2008
Friday, September 5, 2008
Monday, September 1, 2008
Here's a little tid bit about "charting". We use the sympto-thermal method. Obviously we are using this method to GET pregnant, not for prevention anymore!
The sympto-thermal method of natural birth control involves determining the few days out of a woman's menstrual cycles when conception can occur, and then avoiding sexual intercourse on those days. This method involves determining this fertile time in two ways: based on a woman's basal body temperature (it rises after ovulation) and by recording other fertility cues (such as mood and cervical secretions). The name "sympto-thermal" method, comes from body cues (i.e. symptoms) and a woman's temperature (i.e. thermal or thermometer).
How It Works: The Thermo Part
The sympto-thermal method requires that a woman take her temperature every morning before she gets out of bed and record the reading. Depending on where she is in her menstrual cycle, there will be slight variations in her temperature. These variations are most easily measured with a special thermometer that has a range of only a few degrees, known as a basal thermometer Before ovulation, the temperature is likely to be between 97.2 and 97.4 degrees F. After ovulation, it will rise by at least 0.5 degrees and is often above 98 degrees F. When the temperature stays elevated for at least three days, a woman may assume she has already ovulated. Intercourse for the rest of the cycle will not result in pregnancy. To determine the infertile time before ovulation, a woman needs to look at her pattern of previous cycles. Her last "safe" day is one week before the earliest recorded day of temperature rise, or 5 days after the first day of her period.
How It Works: The Sympto PartOvulation Method). Cervical mucus and firmness, mid-cycle cramping, breast sensitivity, and mood swings are all symptoms which give insight into the progression of a woman's cycle. With careful monitoring, it is not difficult to predict your fertile period, when intercourse is to be avoided. A blank NFP chart for recording these changes is available to view, download, or print.
Intercourse during the time before ovulation is less safe than the time after ovulation because sperm have been known to live up to six days. For this reason, some couples choose to have sex only after the fertile period. This practice, known as the post-ovulatory temperature method, is the most effective of all natural methods, with a failure rate of only 1% among perfect users. However, it is not recommended because it requires a very long period of abstinence.
Effectiveness of the Sympto-Thermal MethodConsider the sympto-thermal method if you are committed to following the rules strictly. This method can be more difficult to use for women with small infants, as getting up frequently in the night can make the temperature readings less accurate. Illness, travel, or alcohol consumption can throw off the basal temperature reading as well. This is why it is important to use as many body signs as possible to predict ovulation for maximum efficacy.
Monday, August 25, 2008
Stomach has been a little better; nausea has calmed down some too. I wonder if my body was getting a surge of estrogen with my pending cycle?
Thank you for all the diet suggestions. I really need to start making more adjustments if this is something I am going to have to deal with. I'm on vacation this week...might be a little worse with food/drink consumption as usual, but, I promise I'll get back on the horse when we return...and, I won't go too wild with the goodies! Hold me to it!!!
Sunday, August 17, 2008
Wednesday, August 13, 2008
I had another manual therapy apt yesterday. They worked on my belly some more. It was crazy. They were holding two parts of my abdomen, and, had be do a pelvic tilt...my whole abdomen moved (obviously it shouldn't). Wild. Not as sore this time (although a different therapist was doing the majority of the work...she's not as tough).
Friday, August 8, 2008
Physical treatments includes massage, soft tissue mobilization, various connective tissue techniques, myofascial release, craniosacral techniques, mobilization of joints, joint manipulation, mobilization of neural tissue, visceral mobilization, and strain and counterstrain.
They have done WONDERS for my neck. Last year when I went I couldn't move my neck to one side (for whatever reason). Seriously, I love going!
Yesterday we were chatting and I was talking about my endometriosis. She asked if they had ever "worked on" my stomach. Well...no. But, I have read about massage type therapies that are used to help break up adhesions. I was very excited! So, for the last 15/20 minutes of my session yesterday (she actually went over because her last apt of the day canceled) she worked on manipulating the tissues in my abdomen.
Normally, your abdominal area is very fluid...your organs are normally mobile in your abdomen-you can usually move them around a bit. Those of of with endo know that adhesions can cause the organs to literally be glued down or together. She said that things were pretty stiff and unforgiving. She could feel all my organs (weird), and, obviously they don't move like they should. She also mentioned something about my uterus feeling a bit enlarged. Hmmm, interesting (I had inflammation he found during surgery...is it still there?). Things were particularly stiff near my descending colon (where a lot of my pain has been recently).
So, I'm pretty excited. The last 15 minutes of my sessions they are going to work on my abdominal area. :) Maybe this can help! She said that it's not scientifically based, but, that these techniques have been shown to improve fertility. Why not? I feel kind of bruised tonight, and a bit off. She warned me that I might feel kind of icky tonight...said that when things are so stiff and you get things moving around-it could make my body feel odd while it was trying to adjust to the normalcy.
I also learned something interesting about a possible reason for my sciatica pains. She said that with endo comes inflammation. (She used a lot of technical/anatomical terms) and explained that the inflammation could be causing the muscle that surrounds the "tube" with that nerve in it to be "pinched" or have more pressure against it. So, not necessarily that endo has compromised the nerve, but, the inflammatory processes.
Just wanted to share my learning experience yesterday. I'll keep you posted on how the manual therapy is working on the endo.
Colon issues are come and go. I guess it's something I should get used to? We'll see. And, I still haven't heard from my endoscopy. I guess no news might be good news?
Sunday, August 3, 2008
Could colon "issues" be causing reprecussions all the way up into my upper stomach?!? I guess maybe he was right about it all possibly being related to the endo (I thought he was just saying that because he couldn't find any other concrete evidence while in there with the EGD).
Thursday, July 31, 2008
Before the procedure we talked right quick about recent constipation I've had. He definitely feels that it endo related (probably the tummy issues b/c of the colon stuff), since my colon is all sorts of jacked up because of it. It's been more and more difficult to handle lately. He suggested taking some miralax to help move things along.
So, just a bunch of waiting now. I guess it normally takes 2 weeks for this stuff to come through?
Okay, off to a wonderful nap! Thanks everyone!
Wednesday, July 30, 2008
I'll try to update tomorrow! Procedure is nice and early!
Saturday, July 26, 2008
2 big, overflowing handfuls of spinach (I think you are supposed to work up to 5 cups pureed, but, baby steps!)
Couple piece of frozen Mango
Little bagful of blueberries I had frozen (probably about 1/2 cup)
handful of frozen berries mix (strawberry, blackberry)
splash of OJ
I don't have a big fancy blender, so, I food processed the spinach first with a splash of OJ. I poured that into the blender carafe (I can't think of what else you call it). Then I pureed the fruit with another splash of OJ, combined it in the blender with the spinach, and WAHLAH! :)
Delicious, and nutritious!
I'll get more adventurous with other greens like kale and cabbage later...
Friday, July 25, 2008
Anyway, my Dr. said it could take around 8 weeks (could be sooner, could be longer) to get my cycle back. And, it's okay to start trying right away to have a little one. So, wish us luck!!! We have been ready for a family, and, are excited for an opportunity to.
Next week I have an endoscopy-see what's going on in that front. I had to stop my nexium today...not looking forward to next week and not being on that. Am glad that they are going to check things out. AND, glad it's something that we can hear most of the results right away. That'll be nice too. I'm ready for Thursday to be over with. ACK, I can't go in until 11:45. I'm going to starve. Hehe.
Sunday, July 20, 2008
- How long will it take to get my cycle back?
- Is it okay to go ahead and try right away, or, should we wait a while? Any known toxicities from the meds with having a child right away?
- What should I expect these next few months? Is it like coming off the pill? What is my body going to go through? Will I even notice the changes?
I really hope that things cleared up, and, Lupron did it's 'thang. I wonder-I've been having a tender stomach still (off and on). When I first get up in the morning and empty my bladder...or, anytime during the day when my bowels are full-I wonder. It causes a lot of tenderness and pressure in my lower abdomen. I REALLY REALLY hope Lupron did it's 'thang!
I'll start cycling off after Friday I suppose (that's when I should have had my next shot). Maybe I'm being a wuss by stopping. I dunno. 4 months was better than their initial recommendation of at least 3. I just don't like the woozy it's been causing (perhaps the Aygestin was aiding in that?)? Oh, I do know one thing about the Aygestin, it did a FABULOUS job in helping to decrease the side effects from this medication. Only recently have I been having very noticeable hot flashes and night sweats. I was just sitting here a few minutes ago and it was like someone had light a match inside...I actually started to sweat! It was tolerable though. Nothing I wouldn't mind putting up with over pain. But, the woozy freaks me out. Call me nutty.
Friday, July 18, 2008
I just wanted to share how blessed I feel to have my husband in my life. No matter what the day brings-he's there for me. And, I know it. I never doubt it. The good, the bad, the ugly. Through sickness and health. As unlucky as I've felt recently, I couldn't have been luckier in finding him. He defines unconditional love. His patience and understanding astounds me. Sure, we have our moments and he loses his cool or just can't handle my mood swings or whatever is going on at the moment-he'd be completely un-human if that was the case. But, at the end of the day (and the beginning and middle and end), he's there for me, and, I know he always will be. I love you Wes!!!
I really don't know where I'd be without my family and friends. This past year has really just been awful so far (endo stuff, house flood/now mold, family deaths, etc, etc, etc)-and, my friends/family have just been amazing. From phone calls to fun little gifts in the mail, I am constantly being lifted by the support that surrounds me. Even though they don't "understand" what I'm going through, they see my pain and feel it too.
And, my blogger friends...the type of support that I have found here is just fantastic. It's so great to come here and share my feelings, and, have someone understand it. Just to have someone to share my experiences with has really helped to make things more bearable.
Thank you everyone!!!
Monday, July 14, 2008
I was "woozy" a couple of times again too. Not like before, but, just enough to be annoying. And, still the sciatica pain...especially the past two weeks with all the traveling we've done.
I've been thinking about some things...wondering if anyone out there has any thoughts. We are (obviously) gearing up to start trying to have a baby, once my cycle returns. My thoughts are racing back and forth about what endo remains, and, what kind of impact a pregnancy will have on it. I know pregnancy is good for endo, in meaning that while you are pregnant, your body gets a period of rest from the growth and disaster. But, what about what's already there? My stomach gets sore when my bowels are full...sometimes my bladder too. What happens when we add a baby to the area? I mean, does the pain just stop-I find that hard to believe.
Lots of what ifs. It's been a hard couple of weeks, wondering if I'm doing the right thing about stopping the Lupron, and, wondering what's next. I know it's out of my hands, but, sometimes you just can't help all the thoughts.
Wednesday, July 9, 2008
Still having sciatica pains...seems to linger after longer car rides. This weekend we'll be driving for about 6.5 hours-we'll have to be sure to make lots of stops!
My stomach is also REALLY bothering me the past two days. It's always "bothered" me-well, not always but for months now (pre-Lupron). It's lower left abdomen, then, higher up in my stomach. I heard back from the HIDA scan-all is well with my gallbladder. So, next step is an endoscopy, and it couldn't get here any sooner. I am MISERABLE tonight-my stomach is achy and up near my rib cage is that awful pressure. I actually have the feeling in my throat tonight too-that doesn't usually happen. ::sigh:: I also took a prevacid (in addition to my regular daily nexium).
Sunday, July 6, 2008
I must note that I've had some on/off ankle pain-sometimes it feels like I've really just snapped it in half. That feeling lasts a few minutes, and, comes and goes. My face still looks like a little pizza too-that comes and goes too as far as how bad it gets.
Thanks everyone for your support. I couldn't get through all of this without you. I'm starting to get nervous about what's "next" for me...for us. I pray the pain will stay away as I ween off the shots (I hear that might could take months to start cycling again)-for a long time I hope it stays away! But, who knows how long that'll last. All the unknown is just really nerve racking...so, being "done" with the shots will be bittersweet. I still have about 2 1/2-3 weeks until this one will START to fade-so-I guess just a little premature worry? I'm almost 100% sure I'm not going to take shots 5 and 6. I know I'm feeling better-but I think these past two weeks were a sign for me....
Monday, June 30, 2008
I'm not taking the migraine meds-I'm just not. I know how those go. And, besides, if these really are eye migraines, some of those meds are contraindicated!
It's been a constant disorientation for almost a week now. Migraines don't last that long. I also called my eye Dr-they are fitting me in tomorrow AM to take some pics-make sure everything looks good. So, I get a message this afternoon from the OBGYN...I really wish I could play it on here. First of all, the nurse is going ON and ON about how she doesn't know what Aygestin is. I mean ON and ON. Um, hello, did you take a look at my chart? Then, she goes on to say she spoke with the Dr. UMMMMMM, why didn't he tell her what it was? Because, perhaps, she didn't ask him what I asked her to. She continues to babble about with dizzy head and such, perhaps I should go see a Neuro. I wasn't calling for a DIAGNOSIS-I was looking for an answer to a specific question!!!! They called after 5, so, there was no way to return their call. I mean, seriously...speak intelligently when you leave a message on my phone! It's not the first time I've dealt with this either...really makes me wonder!
So, why you ask, did I ask if that was causing my dizziness? I decided to check out the package insert (found it online) for Lupron, and, here's what I found:
Norethindrone acetate treatment should be discontinued if there is a sudden partial or complete loss of vision or if there is sudden onset of proptosis, diplopia, or migraine. If examination reveals papilledema or retinal vascular lesions, medication should be withdrawn.
Things that make you go hmmmmmmmmm....
Friday, June 27, 2008
My Dr. gave me a prescription of antivert to try first for the dizzy. Then, he wants me to try imitrex...I'm not taking that unless I am out of commission-migraine meds are most of the time more harsh that the migraine itself. I wonder what are some natural remedies for migraines (aside from caffiene-although, I'll try that in small quantities).
So, looks like I am having:
Migraine (eye pressure-feel like they are crossing; difficulty focusing; tingling on side of scalp and face)
Not the worst of things, but, I just think I am done. We'll see. I wanted to take it as long as possible for POSSIBLE optimal benefits (I know, nothing is guaranteed), but, I think these are my signs that this is enough. Hopefully this month will go well...I'll try to keep this updated as much as I can.
Wednesday, June 25, 2008
torso (it's not like an xray machine-the machine itself doesn't emit radiation). So, they started an IV line and injected a radioactive tracer into my blood stream. What they bind it with helps direct it where they need it to go-heart, gallbladder, etc, etc. SO COOL! So, I laid there for an hour as my liver then gall bladder took up the tracer. It was cool to watch, although, they need TV's-apparently the latest and greatest machines have DVD players. So, after an hour, then they came in and
gave me this hormone called CCK over a drip IV. It occurs naturally in the body after you eat-it causes the gallbladder to contract. So, I laid there another hour while they took pictures of my gallbladder in action. That part was a little uncomfy-it's kinda supposed to be though. Wes came in before I got the hormone, so, that was nice to have someone to chat with. I wasn't comfy enough to sleep, and, I couldn't during the 2nd hour because I was supposed to be noting symptoms.
I'll hear back sometime Friday or early next week. I should anyway-it's already read. If that turns out okay, then, I get an endoscopy, which, I wish they had just done that while I was having my colonoscopy.
Still dizzy today. It's weird...I've got like pressure between my eyes, and, they feel like they are crossing sometimes. Headache, or, just part of my dizzy spells?
Tuesday, June 24, 2008
Dentist appt turned out okay. No cavities or soft spots or anything like that. The sensitivity has calmed itself. I'll be going in for a cleaning in a few weeks-they'll do xrays then too.
Wednesday, June 18, 2008
Headache the past two days-probably my shoulders; things have been pretty stressful around here the past few weeks.
Random wrist pains as well...the other day went to push myself up off the floor and it felt like it was broken. I had slacked off on my vitamins...I gotta kick those back up!
Thursday, June 12, 2008
Got back on Weds...and someone must have given me their nasty cold on the airplane. Gotta love recycled oxygen!
HIDA scan is scheduled for June 25th. Really not looking forward to it. Still wondering if I should have it done. I mean, I am still not feeling well, but, I just don't think it's my gallbladder. I guess you never know. Body is so mysterious sometimes. I guess it's good to have things ruled out though? I dunno, nuclear medicine seems just a bit much. Again, very nervous.
Friday, June 6, 2008
Called the GI today and they called back with a good report on the ultrasound. My next step is a HIDA Scan, which is a nuclear medicine scan. They'll put a nuclear tracer in and watch it as it moves through my gallbladder. They also may give me a shot to make the gallbladder active. Sounds all super crazy-not really looking forward to it-especially with my previous CT scan reaction. It's a different process though...hopefully. My hubby is coming with me this time!!! ;)
Still feeling nauseated, and, I've been having some of that left leg pain again-it's kinda stabby and on and off. Not really sure how to describe it. I can't sit or stand for long period of time...that definitely aggravates it. Other than that, I'm feeling good! Mood has been pretty good, and, pain is at a 0 in the pelvic region.
Have a fabulous weekend!
Tuesday, June 3, 2008
My husbands grandmother passed away last night. We got the call last thursday that she was heading downhill, so, we knew it was coming. Still sucks. It's been a pretty stressful week, now we are trying to figure out funeral arrangements so we can get a flight to TX. I can definitely tell my anxiety is coming about now. Just so much going on these days.
Thursday, May 29, 2008
Mood is getting better. Sometimes I dunno if it's the meds or just things crapping on us lately-probably a combo. 2008 has been a bit rocky so far-sick, surgery, house flood, now house mold and my husband's grandmother is gravely ill. Hoping things will start to look up soon. I mean, they have to, right? Anyway, some of my ill mood might be just from all the sh*t going on these days. At any rate, I don't feel quite as angry as often anymore. I still get the random bouts, but, NOTHING like before!!
So, we'll see how everything goes. Tomorrow is my ultrasound for my gallbladder. I really hope everything checks out okay with that. As much as I want answers for my nausea, I don't want it to be anything that requires surgery. I'm not a fan of hospitals (even though I work in one).
I probably won't have any news on the ultrasound until next week I assume. I'll keep you updated.
Thanks to everyone for their well wishes!!!
***ALSO, please pray for my blogging friend at the "New Kind of Normal" website to the right. She is going in for her hysterectomy tomorrow! My heart and prayers are with you!!!!***
Tuesday, May 27, 2008
Anyway, that's that. Round 2 of Dr. appts commences on Thursday.
Monday, May 26, 2008
We'll see what happens tomorrow. Hope everyone had nice weekends. Besides a few mood swings and an almost emotional breakdown this AM (I think that was Lupron mood with a side of just feeling SO TIRED of being sick)-it was a nice weekend here. I miss yummy foods!!!
Friday, May 23, 2008
Off to get some rest. It does a body good! I hope!
Thursday, May 22, 2008
I've been off the progesterone 2 days now. Still feel nauseated. I'll try a couple of more days. I don't want to go too long off of it because I think that is help subsiding any of the hot flashes and all that fun stuff.
GI called...wants me to take something for nausea, and come in to see him in 1-2 weeks. We'll see after my GYN appointment next week if I feel like I need to go in. The nurse on my voice mail said he suggested Reglan, which I am NOT trying again (made me feel like jumping off a cliff!), but, she knew I wouldn't want to take that, so, they are suggesting Zofran. I'll look it up and check it out before I call in the morning. I really don't want to take any more meds!
So, again, back to the bleeding...what's up with that?
Tuesday, May 20, 2008
Thanks for letting me vent. I think I needed it today.
Sunday, May 18, 2008
I'm having pains on the left and right of my pelvic area. Not constant, but, noticeable. I do not like this at all. :( PLEASE keep your fingers crossed it's not another cyst. It's been one heck of a year-I'm not sure I can mentally handle that right now.
Leg pains too this weekend. My knee is particularly sore tonight. But, I've done a lot of lifting and stooping with yard and house work, so, I'm not surprised.
My neck has been killing me too. This happens often with me, although, it hasn't happened in a while. It has to do with my posture some, and, where I carry my stress (right in my shoulders/neck). I went to PT last year for it because I was getting such terrible headaches. Wonder if I can refer myself. I definitely have been under some stress lately.
Any of you take any anti-depressants/anxiety? Does it help? I used to take anti-anxiety years ago, but, haven't since. I take xanax on and off; the thought of taking another medication kind of sickens me...but at the same time, do I need it? I know some of my anger/fuss has been from the Lupron, but, it has been such a crazy year (especially with house stuff), that, depression right now wouldn't surprise me. I am just tired of feeling like such a bitch!
Friday, May 16, 2008
ANYWAY, I've been feeling blah still this week. Tummy issues-nausea like back in October. Also, "stomach" pain-right below my rib cage. Heartburn again?! Ugh, I'm on nexium. I'll give both Dr.'s a call next week. I mean, who do I call? Is it endo or a cyst messing me up again (really, this is how it all began), or, is it GI issues on top of this all? Could be side effects? I dunno. Like I've said, I've had these feelings before. I get hungry, but, before I can eat my stomach starts having the pains, and, then I'm not hungry again. Round and round-that's how I feel sometimes.
Pain with BM's-not unusual for me though. I do have adhesions, so, this is not startling. Not awful pain-I just feel full and tender sometimes.
My legs were pretty sore yesterday evening/today. We bowl every Thursday with some friends, and, that must have aggrevated something-that's when the pain started.
Moody still...but, either I'm getting used to it, or, it might be leveling off. Wouldn't that be wonderful?
Hope you all are doing well. I have a goal for next week-get back to exercising. I really was feeling better all around when I was being more active. It's just been so crazy these past few weeks with things to do at the house and such...I just need to make the time. It does the body good. Hopefully I'll be able to make more home cooked meals this week too since we have more mobility in our house. Small steps...
Sunday, May 11, 2008
Friday, May 9, 2008
Still have the "icks". I have this general nauseated feeling on and off. It feels better when I am eating (so I am fooled into continuing), but, about an hour later it returns. I continue to hope maybe this is just nothing, and that this is definitely not a sign of another cyst. Last time I felt this way 2 months later I ended up in a CT scan. Boooooooooooooo!!!
I need to start back exercising. This week and the last have been VERY busy-I don't know where the time has gone! I really think it helped with my symptoms-mostly the HORRID mood swings I continue to have. That was much more regulated with the regular/consistent exercise. I just know I am driving my husband crazy-I'm driving myself crazy!!!
Thursday, May 8, 2008
I'm exhausted and about to nap-exhaustion has been pretty bad this week, but, I've also been REALLY busy. So, that doesn't really help. I've got my schedule clear next week so I can chill. ::insert sigh of relief here::