I am 35 years old, living with stage IV Endometriosis, possibly adenomyosis and struggled with infertility for almost 4 years. I also struggled with PPD and now struggle with PMDD. I am a mother to a son that was born at 18 weeks and too precious for this earth; and now a mother to a son born in August 2011. By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!

Sunday, December 7, 2008

OUCH, where did that come from?

I've had several STABing (I mean, BAM) pains in the lower left area of my pelvis this weekend. Then, tonight I had one right below my diaphragm-like, between where my diaphragm and ovary pains usually are on the right side. That, plus the diaphragm pains (longer this month than usual, but, maybe not as intense)...it's been a little different! I did exercise on Weds night and Sat morning, and, I've been non-stop all weekend. This week won't be much different as fas as being busy either. Hopefully things will calm down with the random pains, but, I can't help to think this is just the beginning. I will keep a positive outlook though-so sense in being icky about a what if.

So, how big can an endometrioma get before you have surgery? Aren't they worried about it rupturing? MORE questions I am pondering...making a list for the RE!


ReadyGo said...

Oh man, I'm so so sorry to hear this! And the question about how big the endometrioma can get before they take it out is the ultimate...I always wondered. So aggravating. I hope it gets better!!

Anonymous said...

i hope you get to see your re soon! i'm seeing mine tomorrow which is good since i have a few questions about some NEW pain i've had since surgery.

Jill said...

I just found your blog and I'm amazed at how your timeline reminds me of my own story. Maybe that's just how it is for all of us who suffer with this disease. I'm 28. Married to my DH for 6 1/2 years now and have been TTC for the last 2 years. I actually did not realize I had Endo until I sought help from a RE. I had had two early miscarriages during the year that we tried to conceive on our own. OB/GYN tested me for clotting problems and blamed my miscarriages on MTHFR(can cause clotting among other things). After 16 months with my OB/GYN, she sent me to see a RE in Feb of 08. He was the first person to say anything about the possibility of me having endo...this was news to me. He said sometimes the only symptom is infertility. We tried clomid in March-no luck, in April we didn't try anything due to residual clomid cysts, and in May we tried a higher dose of clomid-no luck. June he said I probably needed a lap to get rid of my endo. July 18th was my surgery and it was then that I was officially diagnosed with stage IV endometriosis. I had two large endometriomas. One on each of my overies and a few spots of endo and scar tissue in various other places. I apparently lost a lot of ovarian tissue when he removed each of the "omas". Post-op I was placed on 3 months of Lupron shots. I had my first in August and my last one on October 10th. Those shots were pure HELL. I am glad that is over. I am STILL waiting to get my cycle back (9 weeks and counting). My RE said that we would try one round of injectables, but he thinks IVF maybe my only hope. Good thing my insurance covers fertility. I appreciate reading your blog. I would never wish this experience on my worst enemy, but knowing I'n not alone in this gives me hope. I will be praying for you in your journey with endometrisis.

Anonymous said...

It varies, I believe, but usually around 4-5 cm. Mine never inched past 2.5 but lingered for some 15 months. That sucker hung on to my ovary giving me those lovely twinge pains all the darn time! UGH! Hoping yours gets resolved one way or another soon.