I am 35 years old, living with stage IV Endometriosis, possibly adenomyosis and struggled with infertility for almost 4 years. I also struggled with PPD and now struggle with PMDD. I am a mother to a son that was born at 18 weeks and too precious for this earth; and now a mother to a son born in August 2011. By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!





Sunday, August 17, 2008

That weird feeling has a name

I went to the GI on Friday for a FU to my endoscopy. I already knew my results, and, we really didn't even talk about that. Ugh, I always have questions I forget about until later! We ended up talking a lot about my current symptoms, which, he is chalking up ultimately to endo. I'm pretty much constipated (this blog is all about some TMI, right?) for over a month now, which, in turn is causing the dyspepsia (weird feeling in my throat I talked about in my last post) and NAUSEA. Oh, the nausea is just awful. Why so constipated? That lovely endo that was bearing down on my colon. Just lovely. I'm on a regimen of Miralax and Fiber supplement right now-for the next 2-4 weeks. I hope it helps. If not, then he wants me to try Senekot...but, he doesn't really want it to get to that point. Bless his heart-he was asking me if there was an endo surgery, or, if the GYN had planned on following the Lupron up with another surgery, or, if I could take Lupron again. I had to explain that it is only really approved for 6-12 months of therapy (the last 6 with add back) because of bone loss concerns. BESIDES, my colon stop up started the week after the 4th of July...2-3 weeks before the Lupron would have been decreasing out of my system.

8 comments:

Kstan said...

I initially posted a comment with my history under "Did the endo really work" but after reading this particular entry I can't begin to tell you how identical our symptoms and therapy timelines are. It's spooky. Before I found out about the gall bladder I was diagnosed with dyspepsia from constipation post-laporoscopy (Miralax is a MIRACLE DRUG!) Constipation trick.. put your feet up on a stool (I use the side of my bathtub) while you're using the bathroom. It mimicks the squatting position cave men use to be in when eliminating. It opens the bowels and has done wonders for my constipation. I don't know what diet he's put you on but here's what I'm doing: no yeast, wheat, sugar, meat or dairy with hormones and nothing processed. I juice every morning (combining any of the following: greens, beets, carrots, lemon, apple, pear, and other fruit/veg I can find). I wish there was a GI/Endo specialist in the world!

My Endo Journey said...

You do "green" smoothies? Or, is it more of a juice?

Have you ever tried Castor Oil? It just dawned on me today that I could try that.

When is your gallbladder appointment? I had mine scanned and it was fine. I bet you'll feel a lot better after your gallbladder is removed, if that's what they are planning on.

No, no special diet. I am trying to eat better-lots of greens and veggies. I've always been "good" about them...trying to be better.

I've heard that about the stool. A friend of mine has one-she decorated it and all ;) Haha!

Kstan said...

I bought a Breville juicer..a little expensive ($300) but someone gave me a gift certificate to Williams Sonoma so I used it toward the juicer. It's definitely been worth it...endo/GI issues or not...it's changed my life! It fills me up and gives me more energy than I anticipated.

I do use caster oil packs (put the caster oil on a felt pad with a hot water pack over it so the oil is absorbed into the skin.) I use to do it every night, but i have to admit that lately I've gotten a little lazy with the packs. I try to leave it on 45 minutes.. I definitely think it helps. If nothing else, the act of laying quietly for a period of time is calming in and of itself The packs were initially recommended to me by Marcelle Pick at the Women to Women Clinic. I saw her several years ago...but to be honest I wasn't quite ready for everything she wanted me to do.

As for the gall bladder, I have a consultation with the surgeon on Thursday of this week. I hope it helps. I've been so sick today with pain and fatigue. I just want to feel better...and I know you do too.

I love the idea of decorating the stool! It really does help... you should try it!

endochick said...

I used to use mineral oil - directions on the bottel - in water. I had to do this most of my childhood because I had a megacolon and they didn't operate.

Now my constipation isn't no where near as frequent so I just eat more fiber - I LOVE the Fiber1 bars (the chocolate one is just like a candy bar - and who doesn't want to eat a candy bar for breakfast?). That with a couple cups of coffee - or other hot liquid in the morning usually helps. I had a GI tell me hot liquids in the morning with fiber is great for producing bm's.

My Endo Journey said...

I've heard about the castor oil packs...my naturopath told me to use them. I need to start doing that.

Thanks ladies for all the tips! ;)

Cathleen said...

Ugh! I am so sorry that you feel so crummy. I was diagnosed with stage iv endo a couple of years ago. Endo sucks!!!

I ended up seeing a specialist in Atlanta (I live in Texas.) and having special laproscopic surgery. It changed my life. My husband completely agrees.

I hope you start to feel better soon!!!

Duck said...

Here is some assvice, add lots of fruit, veggies and flax meal to your diet. I too had this (of course i have endo growing inside my intestine), and have stabilized after many many months ( i also try to do the diet that kstan does and chi kung ). Good luck

Jeanne said...

My endo journey,

Your new blog layout looks great!!

Jeanne