I am 35 years old, living with stage IV Endometriosis, possibly adenomyosis and struggled with infertility for almost 4 years. I also struggled with PPD and now struggle with PMDD. I am a mother to a son that was born at 18 weeks and too precious for this earth; and now a mother to a son born in August 2011. By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!





Monday, April 7, 2008

Is it Friday yet?

This is always my first question on MOndays. Haha. ;) Not that I wish the days away...just the work parts!

DAY 7 (Week 1!)
Today's symptoms:
- Wrist pain-1-2
- "Vein" pain (Legs and feet)- 3
- Chest discomfort-2/3 (more towards the sternum area; heartburn perhaps?)
- Starting more of a heavy spotting-requiring a pad now
- Last night-NIGHT SWEAT! Yikes, it was hot. In all fairness, I've had night sweats before, and pretty frequently

I also have a stuffy nose, which, could be attributing to the chest discomfort? A bit short of breath sometimes, but, I think that's because I am getting myself worked up about the discomforts.

6 comments:

Lupron Journal said...

You know I had a scratchy throat/cold within the first week too, but I had been around a friend's little girl who had been sick. So I thought it could be that. Now that read your comments, maybe you do get a little cold at the beginning.

I have a variety of chest pains. Some are the pleurasy type we were talking about. Others seem closer to my heart. I had my blood pressure checked and it was fine.
Then under the left ribs, I get something there too.

What a mess we are! I was sad when the side effects started ramping again last night and today. Those sweats are something else, aren't they?

Thanks for the well wishes. You rest up too! xxoo

517Butterfly said...

I got a TON of heartburn when I was on Lupron! I kept Tums on hand. I bled a lot too so hopefully yours will clear up soon. If it doesn't, you may need to increase your add-back. Ah night sweats, aren't they great! I will be right there with you shortly on all of the lovely symptoms you are having so I feel for you. I hope that relief will be right around the corner!

Lupron Journal said...

Chest tightness... I'm not sure I would describe it quite like that. When I breathe deeply, it's painful at times in my lungs and near my heart. I'm not able to breathe deeply at all right now. I'm not having the heartburn like 517Butterfly is talking about. Maybe the tightness is from that? Reflux? In which case, you can try Prilosec (OTC) once in the morning and once at night. Let me know how you make out with your PCP. I'm struggling myself trying to figure out who is the best person to go to with these side effects. OH, btw, did you ever post the results of your colonoscopy? I hope you are well.

Deb said...

Thanks for keeping this journal. I just discovered it today and am so grateful that you are sharing your journey. It's nice to know us "endo girls" aren't alone!

I, too, have stage 4 endo. Had surgery right after Christmas to remove a tennis ball-sized cyst from my left ovary. The cyst had attached to my bowels, causing lots of pain. On Friday, I go for my 3rd Lupron injection.

For me, the first month was marked by a never-ending headache. In month two, the headaches were better but have had shoulder aches. Anyone else had that? The hot flashes make sleeping VERY difficult, but I really do think I'm feeling better.

For me, the most difficult part is emotional. It's just so exhausting to deal with this condition. At times, I feel bitter that other people have no idea how difficult it is to hold it all together. I'd be interested to know what others do to deal with the emotional aspects of the illness. Do you talk openly to people about the disease? How do you deal with insensitive people?

My Endo Journey said...
This comment has been removed by the author.
My Endo Journey said...

Hey 517! Seems that you and LJ might have been right about the heartburn?

Hello Deb! Thank you for visiting too, and for sharing your story. Your colon involvement and cyst sound like my story. Thanks for sharing your Lupron experience...that is really helpful and uplifting as well.

I went through a bad funk right after diagnosis. I blogged about it in the very beginning...gotta get your grieve on before getting on. It's really hard I think for other people to understand. Endometrosis itself is pretty common, and, comes in a HUGE variety of symptoms. I have a friend who has it...has NO pain, NO problems with it at all. Then, there are cases like us or folks who are dealing with infertility issues. So, I think people think, oh, it's "Only" endometriosis-no biggie. It's just a matter of understanding. I had NO idea the extent of endo until just a few months ago. I thought it was just a pain disorder. I think it helps to educate people on the disease-just so they know.

Insensitive people? Heck, I say ignore them! No one knows anyone's pain...in any disease or whatever out there. Unless you have gone through something yourself, or, have watched people around you...it is hard to really know what someone is going through.

I hope you can feel like you can talk to your friends and family-and if not, we are definitely here if you need to vent!