I am 35 years old, living with stage IV Endometriosis, possibly adenomyosis and struggled with infertility for almost 4 years. I also struggled with PPD and now struggle with PMDD. I am a mother to a son that was born at 18 weeks and too precious for this earth; and now a mother to a son born in August 2011. By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!





Friday, April 3, 2009

19 DAYS...

The appointment went well today. It was a whirlwind of information. But, good information!!!!

First of all, my stomach is healing nicely. I'm going to start tapering off the 'roids soon and start using vitamin E to help promote the healing and diminish the risk for scarring. I don't think scarring will be too bad from everything that happened-the raised infected/irritated skin is giving way to smooth, albeit raw, skin underneath. Still a little itchy...I think it's less of irritated itching now and more of the "healing" kind of itch. Ya know?!?!

My endometrioma was ideal...meaning it wasn't stuck behind my uterus wedged in between that and involving my colon as she had suspected from the ultrasound. It was just sitting, right there, easy to access. It was HUGE!!! She was able to take that out and take out the cyst wall and put an adhesion barrier over that healing ovary. She said it dissolves; i'm not sure how long, but, it gives it a fighting chance to heal itself. The lighted stints on my ureters were a HIT-very good thing with as much endo as I had. My tubes are a swollen mess, but, they were not blocked or causing any danger to me, so, they were left in tact. The GI was able to remove a lot of the endo sitting on my colon-there was nothing penetrating. There was extensive endometriosis (not shocking), and she said she obviously was not able to get to it all. This surgery was done in respects to my fertility. So, she did what needed to be done, without overdoing things, put simply. The goal of this surgery is to conceive...so, hopefully that can get done!

So, after the surgery chat, we talked a little more and got a layout of when IVF is going to start, and have a better idea how the next two months will go. IF everything goes well (I'm going in this with the utmost positive attitude), we are looking to know something by the beginning of JUNE! She is a little concerned giving my past sensitivity to medications, but, I've never had (most of) these before, so, you never know.

I've promised myself to stay away from google. But, I told my hubby I will be relying on the wealth of blogs and friends out there for support and information as I go through this, as a lot of you are going through it all as well. And, I will blog here about our experience in hopes to help someone else.

Lots more information to type, but, I think this is all I can logically rattle off right now. WOW! Lots going on in my mind. Very excited, but, trying not to get to excited at the same time, especially as I continue to heal. The prospects are very exciting, and, I feel blessed to have this opportunity.

Start date for Lu.pron is 4-22! (Yes, Lu.pron...ick) I'll continue the Aygestin up until that point (and a few days beyond). More about that later!!!!

7 comments:

Yaya said...

Yes, don't google!!!

Glad the appointment went well and surgery seemed "simple" enough and like you'll be able to conceive soon! Good luck!

Trisha said...

I don't understand a lot of this, but you sound encouraged and happy so I am too. :) Fingers crossed!

Amanda said...

I'm so glad to hear the surgery went as well as it sounds like and that your wounds are finally beginning to heal! I've got my fingers crossed and you in my prayers for the next few months!

Mommy of a miracle said...

I am happy also that the surgery went good. I am praying you can heal quickly and that you can handle all the medications well. :o)

katery said...

lupron, boooooo! but yea if it helps! i am still waiting for af to start after my last lupron injection EIGHT WEEKS AGO!

Faith said...

Ha ha, yes -- Dr. Google isn't always on the money :) Glad you've got some dates to look forward to!

Barefoot said...

Hooray for Lupron! (Well, kind of...)

Left a little something for you on my blog, by the way.....