I am 35 years old, living with stage IV Endometriosis, possibly adenomyosis and struggled with infertility for almost 4 years. I also struggled with PPD and now struggle with PMDD. I am a mother to a son that was born at 18 weeks and too precious for this earth; and now a mother to a son born in August 2011. By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!

Tuesday, June 30, 2009

Nothing much to report

Just as I suspected, nothing much, clinically, going on with my incisions. Apparently this is my normal? She did a physical exam, which I was thankful for (at least I didn't just get the glance over). They are so kind at the office. She didn't make me feel stupid for coming in; she actually validated my concerns and listened. But, when it came down to it, there was nothing much to report. There wasn't anything palpable on the exam. These things I am thankful for (no signs of infection); everything seems to be skin deep. But, as to WHY I am at the recovery level of a patient 3 weeks post op at 3+months out-we don't know. Luck of the draw?

I was able to deduct a certain bathing suit to my recent flare-ups. It's a one-piece suit (to avoid the sun to that area), but, maybe it was too tight and trapped in moisture for too long? I have tankini's I can wear now to try. I kinda don't even want to be out in the heat!!!

The RE said not to put a THING on it...and just see how it goes for the next week or so. No steroids, no creams, no oils. Just mild soap and water to wash. She also said that a flare up after a steroid is not unusual-it's called rebound. So, maybe coming on and off steroids is rebounding? Doesn't explain the belly button. But, there was no pus to be seen-again, no infection.

So goes my days. Unexplained case study.


I cannot BELIEVE I forgot to tell my RE about these "bug bites" that I get around my incisions. It hasn't happened in a long while, until this recent flare up. Near my incisions sometimes I'll start having random, intense itching. When I inspect it, there is a mosquito bite looking thing near the incision bed. Like, the white raised skin you get just after you get bitten? That's what it looks like!!! Ugh. Anyway, I got it last night near my lower left incision...and tonight I had two in my belly button next to my incision there and one again near the lower left. W-T-F?!?! I feel SO stupid calling back about this, but, I need to. Seriously, so stupid. "Um, I forgot to tell you I get these bug bite looking bumps that come and go within an hour or two of surfacing. What is that about?". Ughhhhhh.


Yaya said...

Huh, well I hope it gets under control soon. Hope you have some sensitive soap!

Jeanne said...


I am so sorry. Please don't worry about what they think. It is what it is. You can't control when the "bites" appear. Besides, you have a LOT on your plate and can't be expected to remember every detail. You're doing your best to tell them what's happening each time you see them. I'm so sorry. :(


Anonymous said...

stupid incisions.