I am 35 years old, living with stage IV Endometriosis, possibly adenomyosis and struggled with infertility for almost 4 years. I also struggled with PPD and now struggle with PMDD. I am a mother to a son that was born at 18 weeks and too precious for this earth; and now a mother to a son born in August 2011. By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!





Tuesday, January 6, 2009

Maybe it's a blessing in disguise

Maybe it was a blessing in disguise that my (now former) RE dropped the ball and just didn't give us the warm fuzzies.

My Dr.'s apt today was WONDERFUL!!! Lots to type...I'll just post the quick and dirty facts right now. Basically (the new RE) she doesn't think I need the HSG (with my surgery results and because of my allergy-she said there wouldn't be much benefit-she already knows my tubes are damaged, and, they were open during surgery); she wants to monitor me CLOSELY because of my risk for an ectopic pregnancy (per the endo), starting if we have a positive pregnancy test this go round. If not positive, she said we can try another round of Femara...but, she really recommends IVF, especially with my endo and damaged tubes. IF I have a positive pregnancy test, they will monitor my blood levels-if they start going (up or down, I can't remember) it's either a miscarriage or ectopic, and at that point they would give me something to get it out of my tubes and out. :( That is kinda yucky...but, I guess if it is either going to miscarry anyway, or, cause me to have an emergency surgery, resulting in it's demise as well...then, it's okay? Ick. She said if I were to have to have an emergency surgery because of a ruptured tube, it's not going to be an easy surgery, and more than likely a laparotomy (full incision). So, she obviously doesn't want to go there.
She was so much more informative and not high strung-and laid out EVERYTHING. She even went over IVF. If we decide not to start IVF next cycle, then we'll start in April (they stop in March to clean the lab machines, tune everything up, QA stuff) with a implantation in May. If we decide to wait longer, I'll take BC during that time to try some damage control. Sooooo, yeah. There's the short gist. LOTS of information. AND, she talked about stress and anxiety too...wants me to go talk with someone and maybe start acupuncture!!! I really appreciated her covering the whole picture. It was refreshing!

Tonight I am feeling AWFUL! My stomach all of a sudden starting not feeling well, and now I am tender to the touch. I am hoping this does have anything to do with the ovidrel I took a few days ago. I need to make sure I don't start swelling, gain wait, or have any extreme pain. I have't been tender and icky like this in a while!!! I'm going to lay down and hope the pain and the bloating all go away!

11 comments:

endochick said...

Glad you found a doctor who sounds promising :-) Good luck and hope the new treatments work!

Rae said...

Well, that sounds much better!
I'm going to cross my fingers that the betterness just keeps on coming.

Jeanne said...

I'm so happy you like your new RE!!! That's awesome!

It sounds like she was thorough and spent a fair amount of time with you. That's great.

It's so good that she's already thinking ahead about things like your risk of ectopic pregnancy.

She sounds very proactive. Many doctors would be more "reactive" than this. She sounds like she is good at "seeing down the pike" what potential issues may arise and how to best handle them with good planning!

It really sounds like you and your husband have a much better idea of "where you can go from here" just from this one appointment. That's huge.

I certainly hope you never have a situation that would necessitate a laparotomy. If you ever do need one, I have been through it.

While the reason for mine was not tube-related (mine was intestinal problems), I could give you some ideas on recovery time and such... if that ever happened.

I hope you'll never need to know about laparotomies (!) but if you ever do, you'll know you can ask me questions and I'll do my best to help.

I LOVE LOVE LOVE, and did I say LOVE (?) ACUPUNCTURE!!!

I cannot say enough about acupuncture! I have been getting it for 8 years now. With no disrespect to my army of specialists, my acupuncturist has helped me more than all of them put together!!

Acupuncture helps so many symptoms of so many illnesses for me. It is SOOOO relaxing too!

I liked it from day one. It took me a few appointments to get used to it and just let myself totally relax... I quickly reached the point where at least 95% of my acupuncture appointments end up with me "zoned out" for almost the whole appointment.

It's beyond awesome!

This is THE most relaxing thing I have ever found. With my sleep apnea and fibromyalgia, I don't sleep well.

I FEEL FAR MORE RESTED AFTER ACUPUNCTURE THAN AFTER SLEEPING ALL NIGHT!

My acupuncturist uses Japanese-style needles which are very thin. They look like the circumference of a hair. They are SO small. They are flexible and nothing like I pictured acupuncture "needles" would be.

They are very different than hypodermic needles!

At least now you have a plan you are comfortable with and some peace of mind that you have a doctor's office you can work with. :)

Feel better & rest!

Jeanne

ReadyGo said...

I'm so glad your appointment went so well. And thank you for the highly informative post. As I read what you write, I feel like I'm looking at my life a couple of years from now. I hope I find a doctor as proactive and helpful...

It's so nice to read your thoughts and your experiences. I hope you know how much you're helping people like me get prepared for what's to come, and feel comforted knowing others are out there dealing with things so similar to my own life. :)

My Endo Journey said...

Thanks everyone! :) ReadyGo-I hope you won't be here; but, it is nice to find people to relate to when you need them.

Yaya said...

Sorry you're feeling icky :(

Glad you like your new doc. I know how empowering it can feel to finally have a doctor that you like.

Good luck!

Kischa said...

I'm glad you found a good RE, it makes all the difference. I hope this cycle works out for you and you don't have to go through IVF.

Even though I had surgery and 2 HSGs (all clear), my doctor is also concerned with me having an ectopic pregnancy. Since I'm not doing IVF right now(although strongly recommended) they have to monitor me very closely also.

By the way, I'm 17 DPO - still no AF and my HPT was a BFN. Go figure!

Hope your cycle goes better than mine.

itsunusual said...

This Dr. sounds excellent. With your age, you are a great candidate for IVF.
I wish you much luck!!!

Amanda said...

I'm so glad your appoinment went well - having an understanding doctor makes all the difference!

Good Luck with all that is to come I shall be thinking of you and checking in lots.

Thanks for popping over to my blog - yes I shall now be posting about my endo the instead of my private blog :o) I decided all those who didn't want to read it would just have to stick it lol!

katery said...

seriously, i had the ectopic emergency surgery and obviously it totally sucked. i'm glad you found an re that you are comfortable with, it definitely makes a difference.

katery said...

well, my husband and i have been ttc for 17 months now. i had a laparoscopy in november which revealed stage III endometriosis (no big surprise there), so my re decided to put me on lupron for 3 months before we start ttc again.