I am 35 years old, living with stage IV Endometriosis, possibly adenomyosis and struggled with infertility for almost 4 years. I also struggled with PPD and now struggle with PMDD. I am a mother to a son that was born at 18 weeks and too precious for this earth; and now a mother to a son born in August 2011. By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!





Thursday, May 29, 2008

Round three

And no cysts! I dunno why I get myself all worked up-my Dr. had no problem with doing the ultrasound. He was really great about it. Everything looked good. My ovaries are a little enlarged, but, nothing more than they have been, and nothing outside the normal limits. So, it was a good visit. I haven't decided about shot#4 yet. He is encouraging me (of course) to continue treatment since everything is going so well with the side effects (KNOCK ON WOOD); I told him I'd make the decision about 1/2 way into this one.

Mood is getting better. Sometimes I dunno if it's the meds or just things crapping on us lately-probably a combo. 2008 has been a bit rocky so far-sick, surgery, house flood, now house mold and my husband's grandmother is gravely ill. Hoping things will start to look up soon. I mean, they have to, right? Anyway, some of my ill mood might be just from all the sh*t going on these days. At any rate, I don't feel quite as angry as often anymore. I still get the random bouts, but, NOTHING like before!!

So, we'll see how everything goes. Tomorrow is my ultrasound for my gallbladder. I really hope everything checks out okay with that. As much as I want answers for my nausea, I don't want it to be anything that requires surgery. I'm not a fan of hospitals (even though I work in one).

I probably won't have any news on the ultrasound until next week I assume. I'll keep you updated.

Thanks to everyone for their well wishes!!!

***ALSO, please pray for my blogging friend at the "New Kind of Normal" website to the right. She is going in for her hysterectomy tomorrow! My heart and prayers are with you!!!!***

Tuesday, May 27, 2008

Gallbladder?

That's the word of the day. Dr. wants to check it out-first by ultrasound. If that comes back okay, then nuclear medicine scan, then, if that's okay, endoscopy. At least he has a plan? I'm SO TIRED of being poked and proded. Ugh. I am still going to demand an ultrasound on Thursday. Not that I want it to be ture, but, I just feel the same as I did before. None of the MD's think this is plausible. Why not? You look up endometrioma online, and a symptom is nasuea. Anyway, we'll see. At least the GI is trying to look out for me-he wasn't pleased to see me again (in the manner that I should have been better!). And, I have been having random pains after I eat, so, I guess it's better to have it checked out. I dunno about the nuclear medicine test though-that sh*t freaks me out! I'll have to read up some more on it. I know our cancer patients have treatments and scans over there-I just don't know all the details.

Anyway, that's that. Round 2 of Dr. appts commences on Thursday.

Monday, May 26, 2008

Still not feeling better

Maybe a little? Maybe. Tomorrow I have an appointment with the GI. He gave me something for the nausea-it's not really helping. The sour stomach thing comes on now after every meal or beverage (even water). I went from nausea to nausea+stomach pain. It's SO WEIRD, because, it doesn't bother me WHEN I'm eating-it feels better then. So odd!

We'll see what happens tomorrow. Hope everyone had nice weekends. Besides a few mood swings and an almost emotional breakdown this AM (I think that was Lupron mood with a side of just feeling SO TIRED of being sick)-it was a nice weekend here. I miss yummy foods!!!

Friday, May 23, 2008

It's "not common"...

But it happens. Story of my life recently, huh? ;) ANYWAY, apparently the bleeding is normal-so says the OBGYN. K, we'll see about that. I'll try another day off the progesterone...it hasn't subsided the nausea. Actually, I'm just feeling worse and worse as it seems. Today it's a pain (almost like a burning-I dunno how else to describe it) starting from my pelvic area all the way through my stomach up to my ribs. Not like endo period pain, but, like a tummy ache almost? UGH, I'm so over this!!! The GYN WILL do an ultrasound-I need answers. GI also called me in something for the nausea, and, I have an appointment with them on Tuesday-even though I think it's not that. WHo knows these days though. The weird thing is (TMI), it that the ache hurts worse when my bowels are full. That could hurt all the way into your stomach? The body works in mysterious ways.

Off to get some rest. It does a body good! I hope!

Thursday, May 22, 2008

Bleeding?

So, what should I think about that? I've been crampy and uber nauseated this week...and tonight after I went to the restroom, I noticed I am bleeding. Enough to wear a panty liner. Soooooooooo, why am I bleeding after so long?

I've been off the progesterone 2 days now. Still feel nauseated. I'll try a couple of more days. I don't want to go too long off of it because I think that is help subsiding any of the hot flashes and all that fun stuff.

GI called...wants me to take something for nausea, and come in to see him in 1-2 weeks. We'll see after my GYN appointment next week if I feel like I need to go in. The nurse on my voice mail said he suggested Reglan, which I am NOT trying again (made me feel like jumping off a cliff!), but, she knew I wouldn't want to take that, so, they are suggesting Zofran. I'll look it up and check it out before I call in the morning. I really don't want to take any more meds!

So, again, back to the bleeding...what's up with that?

Tuesday, May 20, 2008

If I had a tail, I'm chasing it....

So, I finally called my OBGYN yesterday to let him know about my persistent nausea. He called back today, and, he is writing this off as possible GI issues. Really? Are you for real? Have you not noticed ANY connection between my GI and GYN issues lately? He said that maybe, possibly, it could be the progesterone. That doesn't make much sense to me-I've been on it for 2 months straight now...why would that be causing the "ill feelings" I've felt in the past 3 weeks. If he wants to chalk it up to side effects, I'd say it's the Lupron. But, I dunno. I've felt this way before...this is a familiar ill. This is not uncharted territory. So, I'll appease the Dr. and lay off the add back for the next few days. I have an appointment with him (not just a nurse) for this possible last shot. I'm not making any decisions about continuing until mid way through #3. Anyway, if his add back therapy theory doesn't pan out, I'll make sure he listens to me next Thursday. Who knows me best? I do, and I am not right in the pelvic area somewhere...and I don't think the GI is going to be able to do anything about it. So, do I just demand an ultrasound for peace of mind on my theory (a cyst)? What would you do? I hate this round and round. I mean, maybe there is some GI issues going on (my stomach also "burns" right below after meals, when I feel like eating)...but, they've always been tied to the GYN. I just have a hard time grasping all of this. I was almost in tears after I got off the phone today...sometimes I just feel like I am talking, and no one hears me.

Thanks for letting me vent. I think I needed it today.

Sunday, May 18, 2008

This weekend

This weekend went pretty well. I'm still waking up nauseated (I'm calling the Dr. tomorrow) and feeling so-so during the day. Eating has become boring once again (nooooooooooooooo, I love food!), but, that really hasn't stopped me from eating. I think that (not knowing what to eat) has a lot to do with that is having been "not allowed" in the kitchen with our recent house work. Hopefully I can get back in there sometime early this week.

I'm having pains on the left and right of my pelvic area. Not constant, but, noticeable. I do not like this at all. :( PLEASE keep your fingers crossed it's not another cyst. It's been one heck of a year-I'm not sure I can mentally handle that right now.

Leg pains too this weekend. My knee is particularly sore tonight. But, I've done a lot of lifting and stooping with yard and house work, so, I'm not surprised.

My neck has been killing me too. This happens often with me, although, it hasn't happened in a while. It has to do with my posture some, and, where I carry my stress (right in my shoulders/neck). I went to PT last year for it because I was getting such terrible headaches. Wonder if I can refer myself. I definitely have been under some stress lately.

Any of you take any anti-depressants/anxiety? Does it help? I used to take anti-anxiety years ago, but, haven't since. I take xanax on and off; the thought of taking another medication kind of sickens me...but at the same time, do I need it? I know some of my anger/fuss has been from the Lupron, but, it has been such a crazy year (especially with house stuff), that, depression right now wouldn't surprise me. I am just tired of feeling like such a bitch!