I am 35 years old, living with stage IV Endometriosis, possibly adenomyosis and struggled with infertility for almost 4 years. I also struggled with PPD and now struggle with PMDD. I am a mother to a son that was born at 18 weeks and too precious for this earth; and now a mother to a son born in August 2011. By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!

Monday, September 15, 2014

Talk to me about hysterectomy

I'm over my uterus.  Over it.  I hate it.  It hates me.  Mutual feelings I suppose.  I'm now having my cycle every 20-25 days with light bleeding at least 5 days before.  So, I'm bleeding every 15-20 days.  I'm totally over it.  Not only that, but, my cyclical migraines are back...the ones that I used to only get on BCP.

I can't take BCP because of my migraines with Auras...I don't WANT anything INSERTED inside of me.  I dont do well with drugs sometimes...I can only imagine.

I am seriously considering talking to my Dr. about a hysterectomy.  Obviously I'm not having anymore children (not for lack of trying).  I'm pretty sure you have to ovulate for that?  ;)

Give me the pros and cons.

I found a "Center for Pelvic Health" here, and, I'm going to make an appointment.  I'm DEFINITELY done with my OB's office.  They tell me irregular bleeding isn't a symptom of endo.  So, when I looked on THEIR website the other day, why is that at #3????

So frustrated!!!


Anonymous said...

I totally understand this post. I'm only 27 and we don't have any children yet, but I am SO over my uterus! If it wasn't for my strong desire to have at least one child, I think I would strongly consider a hysterectomy. I'll probably think about it seriously if we do have one child. Ugh, so sorry! I hope you get some more helpful answers soon. XOXO

Cheri said...

Okay, I am 60. I also had endometriosis from about age 12. Terribly painful every month. I described them as white hot cramps. I was very fortunate to have two children with no difficulties. (You're friends with Lisa in the blog world. I've followed your story from the beginning.) Anyway, at age 34, I had had enough. I wanted no more children, and I was tired of spending several days a month in bed with debilitating pain, headache, nausea, and diarrhea all caused from endometriosis. So I had a hysterectomy. It was the best thing I could have done for myself. I did not have ovaries removed because I was so young. Unfortunately, those had to come out ten years later due to a cyst, but I think the longer you can keep them, the better. The estrogen is good for you, and you do lose some when you lose the uterus, but it just is not worth the pain and suffering. I have four sisters with the same health history and all had hysterectomies. None of us regretted it. Good luck with your decision.(And good for you for finding someone who is willing to do what you feel is best for yourself.)

Rebecca said...

I had a a laproscopic surgery done on my pelvis two years ago. Stage 3 Endo was found when they didn't think they'd find anything but a large cyst they needed to remove. 10 weeks ago I gave birth to my daughter and the following day they had to take my uterus. I'm glad it is gone but sad that I wasn't able to have a bigger family. This week I'm off to see the oncologist gynecologist for more removal of the endometriosis.

dacjess said...

Hi. This is something I had thought about, but after talking with my doctor and researching it some more, I learned that it is NOT a guaranteed cure. Symptoms can stay and any patches of endometriosis that you may have will still be there. There is a lot of other more scientific stuff, but that was the bottom line for me. If it would be a guaranteed stop for symptoms, I was ready to do it, but I learned it was not that simple. Good luck.

My blog: http://livingwendometriosis.blogspot.com/

Rachel said...

I had a hysterectomy last summer at age 29. After struggling with Stage IV endo complete with massive and aggressive endometriomas, adhesions that nearly tore my ureter out of my kidney, early ovarian failure, pain, pain, pain, depression, and 5 surgeries in 2.5 years, I was DONE. We knew bio kids weren't going to happen, and I decided to prioritize my quality of life over repeatedly trying drugs that were making my conditions worse. I had a radical hysterectomy (including cervix), gave myself permission to heal slowly, and really took it easy. I haven't regretted it a single time. Honestly. I have more energy, less pain, less depression. I feel like a weight is lifted from my shoulders. I'm so glad I committed to putting myself first and valuing my own quality of life. I did have some residual pain after the surgery but my doctor recommend a physical therapist specializing in pelvic pain. My muscles were so disordered from walking around in pain and clenched for years, but with some core-strengthening exercises and physiotherapy, I'm doing really well. I wish you the best in whatever decision you make, I know it's not an easy one.

Bexy said...

im a bit concern i just got a laparoscopy done this friday oct 3 just day after i started having like a knife stabbing pain on top of my bagina left side only hurts when i stand sneeze or cough im wondering if this is normal i was diagnose with endo stage 1

Dave Huffman said...

Did you ever find the answers you were looking for?

We may be able to help. My wife had a hysterectomy late last year...Shoot me an email if you'd like me to connect you two.


Hope you guys are doing ok...


Anonymous said...

Hello, I am writing to recommend you Endometriosis, the tip of the iceberg a very interesting documentary about the endometriosis . It's in Spanish with subtitles in English and gives voice to the specialist and affected. Hopefully it will be of your interest.

Best regards