tag:blogger.com,1999:blog-2110297268863756645.post9095257392945275401..comments2023-09-21T05:26:47.971-04:00Comments on My journey with Endometriosis: Talk to me about hysterectomyMy Endo Journeyhttp://www.blogger.com/profile/00752744479527167274noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-2110297268863756645.post-12290319067169444792014-10-09T10:37:27.619-04:002014-10-09T10:37:27.619-04:00Did you ever find the answers you were looking for...Did you ever find the answers you were looking for?<br /><br />We may be able to help. My wife had a hysterectomy late last year...Shoot me an email if you'd like me to connect you two.<br /><br />dave@braave.org<br /><br />Hope you guys are doing ok...<br /><br />Dave<br />Director/Co-Founder<br />Braave.orgDave Huffmanhttps://www.blogger.com/profile/01668954773037549031noreply@blogger.comtag:blogger.com,1999:blog-2110297268863756645.post-19528706742864252162014-10-05T20:15:22.339-04:002014-10-05T20:15:22.339-04:00im a bit concern i just got a laparoscopy done thi...im a bit concern i just got a laparoscopy done this friday oct 3 just day after i started having like a knife stabbing pain on top of my bagina left side only hurts when i stand sneeze or cough im wondering if this is normal i was diagnose with endo stage 1Bexyhttps://www.blogger.com/profile/14467715338549578262noreply@blogger.comtag:blogger.com,1999:blog-2110297268863756645.post-53055760708085344482014-10-03T14:19:47.322-04:002014-10-03T14:19:47.322-04:00I had a hysterectomy last summer at age 29. After ...I had a hysterectomy last summer at age 29. After struggling with Stage IV endo complete with massive and aggressive endometriomas, adhesions that nearly tore my ureter out of my kidney, early ovarian failure, pain, pain, pain, depression, and 5 surgeries in 2.5 years, I was DONE. We knew bio kids weren't going to happen, and I decided to prioritize my quality of life over repeatedly trying drugs that were making my conditions worse. I had a radical hysterectomy (including cervix), gave myself permission to heal slowly, and really took it easy. I haven't regretted it a single time. Honestly. I have more energy, less pain, less depression. I feel like a weight is lifted from my shoulders. I'm so glad I committed to putting myself first and valuing my own quality of life. I did have some residual pain after the surgery but my doctor recommend a physical therapist specializing in pelvic pain. My muscles were so disordered from walking around in pain and clenched for years, but with some core-strengthening exercises and physiotherapy, I'm doing really well. I wish you the best in whatever decision you make, I know it's not an easy one.Rachelhttps://www.blogger.com/profile/03941104648832168818noreply@blogger.comtag:blogger.com,1999:blog-2110297268863756645.post-19733860648378795932014-09-20T23:50:30.742-04:002014-09-20T23:50:30.742-04:00Hi. This is something I had thought about, but af...Hi. This is something I had thought about, but after talking with my doctor and researching it some more, I learned that it is NOT a guaranteed cure. Symptoms can stay and any patches of endometriosis that you may have will still be there. There is a lot of other more scientific stuff, but that was the bottom line for me. If it would be a guaranteed stop for symptoms, I was ready to do it, but I learned it was not that simple. Good luck.<br /><br />My blog: http://livingwendometriosis.blogspot.com/dacjesshttps://www.blogger.com/profile/00026719543766120463noreply@blogger.comtag:blogger.com,1999:blog-2110297268863756645.post-58420968882626994352014-09-16T16:32:36.075-04:002014-09-16T16:32:36.075-04:00I had a a laproscopic surgery done on my pelvis tw...I had a a laproscopic surgery done on my pelvis two years ago. Stage 3 Endo was found when they didn't think they'd find anything but a large cyst they needed to remove. 10 weeks ago I gave birth to my daughter and the following day they had to take my uterus. I'm glad it is gone but sad that I wasn't able to have a bigger family. This week I'm off to see the oncologist gynecologist for more removal of the endometriosis.Rebeccahttps://www.blogger.com/profile/06316511791499949824noreply@blogger.comtag:blogger.com,1999:blog-2110297268863756645.post-38911925890405746412014-09-15T18:29:09.481-04:002014-09-15T18:29:09.481-04:00Okay, I am 60. I also had endometriosis from about...Okay, I am 60. I also had endometriosis from about age 12. Terribly painful every month. I described them as white hot cramps. I was very fortunate to have two children with no difficulties. (You're friends with Lisa in the blog world. I've followed your story from the beginning.) Anyway, at age 34, I had had enough. I wanted no more children, and I was tired of spending several days a month in bed with debilitating pain, headache, nausea, and diarrhea all caused from endometriosis. So I had a hysterectomy. It was the best thing I could have done for myself. I did not have ovaries removed because I was so young. Unfortunately, those had to come out ten years later due to a cyst, but I think the longer you can keep them, the better. The estrogen is good for you, and you do lose some when you lose the uterus, but it just is not worth the pain and suffering. I have four sisters with the same health history and all had hysterectomies. None of us regretted it. Good luck with your decision.(And good for you for finding someone who is willing to do what you feel is best for yourself.)Cherihttps://www.blogger.com/profile/12146024037519402234noreply@blogger.comtag:blogger.com,1999:blog-2110297268863756645.post-75647215487397156542014-09-15T14:20:54.818-04:002014-09-15T14:20:54.818-04:00I totally understand this post. I'm only 27 an...I totally understand this post. I'm only 27 and we don't have any children yet, but I am SO over my uterus! If it wasn't for my strong desire to have at least one child, I think I would strongly consider a hysterectomy. I'll probably think about it seriously if we do have one child. Ugh, so sorry! I hope you get some more helpful answers soon. XOXOAnonymousnoreply@blogger.com