I think I can I think I can....
7.3 days for Citalopram to be 99% out of the body...that's Sunday...I can do this....
Going off anti-depressants
I Am Back
18 hours ago
Thursday, April 4, 2013
Wednesday, April 3, 2013
Here's another hell-of-a ride...(A tale of citalopram)
I've decided the time has come to come off my SSRI (Citalopram, generic for Celexa) that I was taking for post partum depression. I started out two weeks ago halving my 10mg pill. Then I 1/4thed it for 1/2 a week. I've been completely off the pill since Saturday of last week (Friday was my last).
This sucks.
Let me back up by saying that after I had my son, I was extremely weepy, dizzy and exhausted ALL THE TIME. Not the normal, holy crap I haven't slept exhaustion. Something different. I struggled with this for about 4 months, and, finally they diagnosed my PPD. I went on citalopram and things got better, slowly. About 18 months after having my son, I was finally feeling normal about 90% of the time. But, I did have some weird visual side effects and ZERO sex drive. After being on the Citalopram for a little over a year, I was ready to be back to being drug free. All those years of hormones to NOT conceive, then all the hormones over the years TO conceive, then the citalopram-I was over it all.
So, fast forward to today. 5 days off citalopram. Here's how it's gone so far:
Day 1- "Wall of exhaustion" right after I ate lunch. A feeling like I needed to curl up in a ball and take a good 2 hour nap or so. It passed within a few hours
Day2- Felt great all day, until about 7PM when the exhaustion was so bad I literally couldn't do anything but sit on the couch. A very strange feeling indeed.
Day3- Woke up and felt like I hadn't slept at all (after 8 hours of sleep!). That feeling combined with a foggy out of body floating feeling lasted until after lunch that day. In the meantime I phoned my Dr.'s office to give them the scoop. THe Dr.'s advise was that it should get better within the next 3-4 days, and if it didn't or it got worse, that I would need to be seen.
Day 4- MUCH better. Woke up exhausted again, but, the feeling shook around 1130. Imagine my excitement. The fatigue returned around 6 that night and lasted another good hour.
Day 5-Felt tired upon waking, but, pretty normal until around 1145. It's now 1 and I'm feeling slightly better, but, still blah.
Sometimes the exhaustion is a shakey feeling. Sometimes it's dizzy. Sometimes it's all things combined.
Of course these withdrawal symtpoms are doing NOTHING for my generalized anxiety. "Will I ever feel normal again? I just got to feeling at my best, why did I do this to myself. Maybe I should go back on. Is this what the rest of my life looks like". This is how my brain is thinking right now...which doesn't help the other symptoms I'm having.
I wanted to share here to see if anyone had similar experiences coming of a SSRI, and if anyone could tell me how long this will last. Dr. says this week. I find that hard to believe. A co-worker said her dizzy spells lasted around a month. Other places say months.
I'm just scared and mad. I don't want to go back on these pills though. They got me through a dark time in my life and I really did need them. But, I want my brain back. I want my enery back. I've got an amazing 19 month old to chase after and to adore...I dont have time for this!
This sucks.
Let me back up by saying that after I had my son, I was extremely weepy, dizzy and exhausted ALL THE TIME. Not the normal, holy crap I haven't slept exhaustion. Something different. I struggled with this for about 4 months, and, finally they diagnosed my PPD. I went on citalopram and things got better, slowly. About 18 months after having my son, I was finally feeling normal about 90% of the time. But, I did have some weird visual side effects and ZERO sex drive. After being on the Citalopram for a little over a year, I was ready to be back to being drug free. All those years of hormones to NOT conceive, then all the hormones over the years TO conceive, then the citalopram-I was over it all.
So, fast forward to today. 5 days off citalopram. Here's how it's gone so far:
Day 1- "Wall of exhaustion" right after I ate lunch. A feeling like I needed to curl up in a ball and take a good 2 hour nap or so. It passed within a few hours
Day2- Felt great all day, until about 7PM when the exhaustion was so bad I literally couldn't do anything but sit on the couch. A very strange feeling indeed.
Day3- Woke up and felt like I hadn't slept at all (after 8 hours of sleep!). That feeling combined with a foggy out of body floating feeling lasted until after lunch that day. In the meantime I phoned my Dr.'s office to give them the scoop. THe Dr.'s advise was that it should get better within the next 3-4 days, and if it didn't or it got worse, that I would need to be seen.
Day 4- MUCH better. Woke up exhausted again, but, the feeling shook around 1130. Imagine my excitement. The fatigue returned around 6 that night and lasted another good hour.
Day 5-Felt tired upon waking, but, pretty normal until around 1145. It's now 1 and I'm feeling slightly better, but, still blah.
Sometimes the exhaustion is a shakey feeling. Sometimes it's dizzy. Sometimes it's all things combined.
Of course these withdrawal symtpoms are doing NOTHING for my generalized anxiety. "Will I ever feel normal again? I just got to feeling at my best, why did I do this to myself. Maybe I should go back on. Is this what the rest of my life looks like". This is how my brain is thinking right now...which doesn't help the other symptoms I'm having.
I wanted to share here to see if anyone had similar experiences coming of a SSRI, and if anyone could tell me how long this will last. Dr. says this week. I find that hard to believe. A co-worker said her dizzy spells lasted around a month. Other places say months.
I'm just scared and mad. I don't want to go back on these pills though. They got me through a dark time in my life and I really did need them. But, I want my brain back. I want my enery back. I've got an amazing 19 month old to chase after and to adore...I dont have time for this!
Wednesday, March 6, 2013
ENDOMETRIOSIS SURVIVOR'S LETTER
Survivor Letter
About the Letter, from the author: Written 17 years ago, the “Survivor Letter”, as it has come to be called over the years, has been distributed around the world and reached over a million unique readers since its release. It has been translated into several other languages; reprinted in books; shared extensively across global patient communities; read to the crowd from the steps of the Lincoln Memorial in Washington, DC at the national EndoWalk for Awareness; given to families, physicians, caregivers, spouses, friends and government officials; and is currently used by various advocacy organizations in the US, Europe and Australia to facilitate efforts at raising awareness and validating those who live with the disease. A heartfelt thank you to all who have felt it was of value enough to share. Unfortunately, a very small number of select individuals have missed the point of, or otherwise misunderstood (perhaps intentionally), the Letter. It was never written "in anger" or from a place of hopeless desperation. This is not an "angry" piece whatsoever; but rather, a heartfelt plea to simply BE HEARD and understood. If one has never truly walked in a survivor's shoes decade after decade, or had an overwhelmingly negative impact on their life as a result of this disease, it is unlikely they would understand the real message - and though others may interpret it as they wish, girls and women who have truly struggled with endometriosis in ways that others will never understand DO 'get it' - and it is for THEM that this Letter was released publicly so many years ago. The Letter is provided below to give those around you a better understanding of what it is like to live with a chronic, painful illness that is under-treated, under-diagnosed and widely misunderstood – and perhaps, even, ignored - by society at large. More importantly, this letter is for all the Endosisters around the world who hold their heads high everyday - in spite of endometriosis. It is you who have banded together and made real strides in this illness. You are all my heros and keep me motivated every day to keep fighting the good fight against this disease for us all.-Heather
About the Letter, from the author: Written 17 years ago, the “Survivor Letter”, as it has come to be called over the years, has been distributed around the world and reached over a million unique readers since its release. It has been translated into several other languages; reprinted in books; shared extensively across global patient communities; read to the crowd from the steps of the Lincoln Memorial in Washington, DC at the national EndoWalk for Awareness; given to families, physicians, caregivers, spouses, friends and government officials; and is currently used by various advocacy organizations in the US, Europe and Australia to facilitate efforts at raising awareness and validating those who live with the disease. A heartfelt thank you to all who have felt it was of value enough to share. Unfortunately, a very small number of select individuals have missed the point of, or otherwise misunderstood (perhaps intentionally), the Letter. It was never written "in anger" or from a place of hopeless desperation. This is not an "angry" piece whatsoever; but rather, a heartfelt plea to simply BE HEARD and understood. If one has never truly walked in a survivor's shoes decade after decade, or had an overwhelmingly negative impact on their life as a result of this disease, it is unlikely they would understand the real message - and though others may interpret it as they wish, girls and women who have truly struggled with endometriosis in ways that others will never understand DO 'get it' - and it is for THEM that this Letter was released publicly so many years ago. The Letter is provided below to give those around you a better understanding of what it is like to live with a chronic, painful illness that is under-treated, under-diagnosed and widely misunderstood – and perhaps, even, ignored - by society at large. More importantly, this letter is for all the Endosisters around the world who hold their heads high everyday - in spite of endometriosis. It is you who have banded together and made real strides in this illness. You are all my heros and keep me motivated every day to keep fighting the good fight against this disease for us all.-Heather
Friday, February 22, 2013
Posting for a friend.....experience with a hysterectomy and the options of the surgery....
I'm posting this in hopes for feedback for a friend:
Perhaps TMI, but I could really use your helpful hints and tidbits seeing how I don't have experience with this or know many people that have talked to me about it...Several doctors have told me in the last month that I shouldn't get pregnant again (and honestly, even if I came across someone now that said it was fine, I can't imagine that I would believe them) and not knowing what the problem is for sure with my uterus (though they are speculating placenta increta, but won't be able to know that for sure until it's under a microscope) I'm still at risk for heavy and irregular bleeding while it's in there. So looks like I've signed myself up for a hysterectomy (March 12th.) The doctor is planning on doing it robotically and lapascopically, then depending on whether I keep my cervix or not, the uterus would be cut up and pulled through the little holes in my belly or all of it pulled out the south end. He's planning to leave my ovaries and I asked him to take out my fallopian tubes (which he readily agreed to though supposedly there's not enough good evidence that it's linked to ovarian cancer to make it the standard yet, but he said it was easy enough and won't affect anything), but I don't know what to do about my cervix. Any experiences? During the conversations in the hospital, the OB was going to leave it and now that it's more "planned" his default plan is to take it. With further questioning, he said I was at low risk for cervical cancer and as long as I am in a monogamous relationship (which is certainly the plan!) the surgery was easier, the recovery might or might not be easier and he had no problem leaving it. He also answered that he had no problem taking it out. So he pretty much left the decision up to me (while assuring me that there is really not a wrong choice in this situation or he wouldn't be offering me a choice.) When I asked why the OB in the hospital didn't really make it a choice, his reply was that in more emergent situations they want to get in and get out to minimize bleeding and leaving it was a quicker surgery. But the fact that leaving it is going against the "default" answer has me pondering and I'd love to get some feedback from someone who's been there, done that either way. Or just some more real life experience about recovery and what to expect or whatever else is on your heart to tell me.
Perhaps TMI, but I could really use your helpful hints and tidbits seeing how I don't have experience with this or know many people that have talked to me about it...Several doctors have told me in the last month that I shouldn't get pregnant again (and honestly, even if I came across someone now that said it was fine, I can't imagine that I would believe them) and not knowing what the problem is for sure with my uterus (though they are speculating placenta increta, but won't be able to know that for sure until it's under a microscope) I'm still at risk for heavy and irregular bleeding while it's in there. So looks like I've signed myself up for a hysterectomy (March 12th.) The doctor is planning on doing it robotically and lapascopically, then depending on whether I keep my cervix or not, the uterus would be cut up and pulled through the little holes in my belly or all of it pulled out the south end. He's planning to leave my ovaries and I asked him to take out my fallopian tubes (which he readily agreed to though supposedly there's not enough good evidence that it's linked to ovarian cancer to make it the standard yet, but he said it was easy enough and won't affect anything), but I don't know what to do about my cervix. Any experiences? During the conversations in the hospital, the OB was going to leave it and now that it's more "planned" his default plan is to take it. With further questioning, he said I was at low risk for cervical cancer and as long as I am in a monogamous relationship (which is certainly the plan!) the surgery was easier, the recovery might or might not be easier and he had no problem leaving it. He also answered that he had no problem taking it out. So he pretty much left the decision up to me (while assuring me that there is really not a wrong choice in this situation or he wouldn't be offering me a choice.) When I asked why the OB in the hospital didn't really make it a choice, his reply was that in more emergent situations they want to get in and get out to minimize bleeding and leaving it was a quicker surgery. But the fact that leaving it is going against the "default" answer has me pondering and I'd love to get some feedback from someone who's been there, done that either way. Or just some more real life experience about recovery and what to expect or whatever else is on your heart to tell me.
Tuesday, November 13, 2012
Interesting article
I've got my first session (in a long while) set up for the last week in November for the accupuncturist. I'm also on the cancellation list (fingers crossed!!!).
In the mean time, I had a friend tell me about this vitamin she's been taking to help her PMS called Chasteberry. Then I found this little ditty. I'm going to try it...as long as it doesn't interfere with my PPD meds. I'm going to grab it this afternoon and run it by my pharmacist. I'm not sure about the two other vitamins on here...maybe one at a time.
Anyone have experience with vitamins helping with any endo symptoms? Probably not pain, but all the other wonderfulness that these effed up hormones can bring? :)
In the mean time, I had a friend tell me about this vitamin she's been taking to help her PMS called Chasteberry. Then I found this little ditty. I'm going to try it...as long as it doesn't interfere with my PPD meds. I'm going to grab it this afternoon and run it by my pharmacist. I'm not sure about the two other vitamins on here...maybe one at a time.
Anyone have experience with vitamins helping with any endo symptoms? Probably not pain, but all the other wonderfulness that these effed up hormones can bring? :)
Friday, November 2, 2012
Acupuncture and Endometriosis
Anyone have success with acupuncture helping your endo syptoms? DO SHARE!!!
Endo and acupuncture article
Endo and acupuncture article
Wednesday, September 5, 2012
US and a new diagnosis?
I had to cancel my original ultrasound because my little guy was sick. So, I got the same a$$ for this appointment. YAY (insert sarcasm here). My ultrasound went well. My right ovary is glued tight to my uterus, no HUGE surprise there. I mean, I thought maybe that would have gotten better with pregnancy, but, that's how this disease rolls. The left has a small endometrioma on it, but, nothing too concerning for the moment. As we all know that's about the extent of endo detection with an ultrasound, but, I wanted to know the state of any endometriomas before talking hormones.
BUT, that was the same 'ole conversation, different day. IUD is my option....and I dont like that as an answer. So, now Im looking for some natural options...for the LEAST to help with the PMS type symptoms. That won't help with pain. ANY SUGGESTIONS?!?!?! Shame that my GYN didn't have any :( I've thought about doing manual therapy to help with the adhesions and pain, but, I had a session a few weeks ago and was nauseated for almost a week afterwards. I'm not sure I can hang!!!
The ultrasound also showed changes in my uterus that shows signs of Adenomyosis. Fantastic, right? Like I need more issues going on in there. This, however, can't be confirmed without a hysterectomy, which I don't plan on having any time soon. I'm not sure if this could further complicate my fertility. "He" (a$$ GYN) says no...but, I obviously don't hold his opinions very highly ;)
Thanks for all of your comments and support!
BUT, that was the same 'ole conversation, different day. IUD is my option....and I dont like that as an answer. So, now Im looking for some natural options...for the LEAST to help with the PMS type symptoms. That won't help with pain. ANY SUGGESTIONS?!?!?! Shame that my GYN didn't have any :( I've thought about doing manual therapy to help with the adhesions and pain, but, I had a session a few weeks ago and was nauseated for almost a week afterwards. I'm not sure I can hang!!!
The ultrasound also showed changes in my uterus that shows signs of Adenomyosis. Fantastic, right? Like I need more issues going on in there. This, however, can't be confirmed without a hysterectomy, which I don't plan on having any time soon. I'm not sure if this could further complicate my fertility. "He" (a$$ GYN) says no...but, I obviously don't hold his opinions very highly ;)
Thanks for all of your comments and support!
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