I am 35 years old, living with stage IV Endometriosis, possibly adenomyosis and struggled with infertility for almost 4 years. I also struggled with PPD and now struggle with PMDD. I am a mother to a son that was born at 18 weeks and too precious for this earth; and now a mother to a son born in August 2011. By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!





Wednesday, September 5, 2012

US and a new diagnosis?

I had to cancel my original ultrasound because my little guy was sick.  So, I got the same a$$ for this appointment.  YAY (insert sarcasm here).  My ultrasound went well.  My right ovary is glued tight to my uterus, no HUGE surprise there.  I mean, I thought maybe that would have gotten better with pregnancy, but, that's how this disease rolls.  The left has a small endometrioma on it, but, nothing too concerning for the moment.  As we all know that's about the extent of endo detection with an ultrasound, but, I wanted to know the state of any endometriomas before talking hormones.

BUT, that was the same 'ole conversation, different day.  IUD is my option....and I dont like that as an answer.  So, now Im looking for some natural options...for the LEAST to help with the PMS type symptoms.  That won't help with pain. ANY SUGGESTIONS?!?!?!  Shame that my GYN didn't have any  :( I've thought about doing manual therapy to help with the adhesions and pain, but, I had a session a few weeks ago and was nauseated for almost a week afterwards.  I'm not sure I can hang!!!

The ultrasound also showed changes in my uterus that shows signs of Adenomyosis.  Fantastic, right?  Like I need more issues going on in there.  This, however, can't be confirmed without a hysterectomy, which I don't plan on having any time soon.  I'm not sure if this could further complicate my fertility.  "He" (a$$ GYN) says no...but, I obviously don't hold his opinions very highly  ;)

Thanks for all of your comments and support!

12 comments:

KC said...

Sorry you are going through this. I have never treated my endometriosis because I wasn't diagnosed until I began ttc. Now I am very interested in treating the pain and getting rid of the endometriomas. This sounds so discouraging. Man, I hate this disease!!!

Elizabeth said...

Hi:) I'm a new reader and reasonably new sufferer of endo myself. I've been reading about natural alternatives on www.Cureendometriosis.com which is written by a woman who has tried heaps of supplements and therapies herself. Might give you some ideas? Good luck!

Elizabeth said...

Hi. Not sure if my first comment came through, so sorry if I'm doubling up! I've been reading www.cureendometriosis.com which is written by a woman who has tried loads of natural therapies and supplements and successfully remained surgery free for her endo. Might give you sme ideas? Good luck!

Rebecca said...

I also was given the diagnosis of adenomyosis without having a hysterectomy (would like to keep it for a while longer to have a kid please).

Marianne said...

No advice but wanted to show my support!

p.s. i think you need a new gyno :-)

Is there any evidence of acupuncture helping?

Kate said...

Sorry you're having all these issues. I think adenomyosis can be diagnosed with MRI as well, can't it? At least that might confirm (or refute) the diagnosis without a hysterectomy...

Kate said...

So sorry you're having so many issues. Can't MRI confirm/refute the adenomyosis diagnosis without having a hysterectomy? Might be worth looking into if you want a real answer.

Misty said...

Dear Endo friend,
I was reading through your blog post about wanting to try something that was natural to help with the pain. I completely understand. About a year ago, I was in your shoes, not wanting to do any more pills, creams, birth control etc. So I found this supplement that has truly changed my life. I am almost pain free when it comes to my endo, something that I could have never dreamed of. I would love to share more about it with you, you can email me at olsenmist@yahoo.com. Hope to hear from you soon! And best of luck on the Endo journey we share together!
Misty

Pamala Bonnell said...

Hello! My name is Pamala. I'm 20 years old and I have stage 4 endo. I've had two surgeries in the past year to treat it and will most likely be having my third in the next couple of weeks. It's a hard thing for me to talk about with anyone except my mom, because I've found that not many people understand it. I've been using journaling as an outlet for the past few months, but it's not really helping anymore. I was thinking about starting a blog. Yours is the best and most helpful that I've found, so I thought I would ask if you recommend blogging? Or what you would recommend in general. Thank you!

My Endo Journey said...

Hi Pamela. I'm so sorry about your diagnosis. I really found blogging helpful and still do while going through this. I dont exactly know why, but, it was just amazing to see and hear from other people going through the same things as I was...and I just didn't feel so alone and knew I could tackle this! Thinking of you!

Lena said...

I too have suffered from this horrible disease. The PMS incredible. To make matters worse, the period is painful. I found that eating foods with I3C, such as broccoli and cauliflower has really helped. There are also certain yoga positions are are helpful. I'm just started a blog trying to address health issues and you can find more info at www.canserverecipes.com

Lena said...

I too have suffered from this horrible disease. The PMS incredible. To make matters worse, the period is painful. I found that eating foods with I3C, such as broccoli and cauliflower has really helped. There are also certain yoga positions are are helpful. I'm just started a blog trying to address health issues and you can find more info at www.canserverecipes.com