I am 35 years old, living with stage IV Endometriosis, possibly adenomyosis and struggled with infertility for almost 4 years. I also struggled with PPD and now struggle with PMDD. I am a mother to a son that was born at 18 weeks and too precious for this earth; and now a mother to a son born in August 2011. By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!





Saturday, November 1, 2008

Welcome new bloggers...and other random thoughts

Thanks everyone for coming to visit! I am so glad that there are others out there to communicate and relate to with these issues! Helps keep me sane! I hope you find this blog and the others I have linked here helpful. We are all here for each other-that's why we write these blogs. If I can help just one person by sharing my experiences, I'll feel that this journey is for a purpose! :) Thank you everyone for sharing your stories!!!!

Things here have been going okay. I started my period on Tuesday-it was pretty bad that day and it's been rather mild since then. I'm still cramping, and, the cycle is SOOOO off. It's so strange. My temps are fluctuating a lot too. I don't know what that means.

I did call my OBGYN about my possible diaphragm involvement that I am following with my primary care-and HE called me back and left a message on Friday. He said that there really wasn't much we can do right now about the "disseminated" endo, but, I needed to keep track of everything. The only treatments he would have available would be Lupron (been there, done that) and continuous BC, which is obviously not an option right now.

I'm glad that he called me and that he knows what's going on. We'll be going to the RE at the end of the month if this cycle doesn't work out. It'll be nice to talk to him about all that is going on too. I have a feeling he'll have a bit more of insight.

Tuesday, October 28, 2008

Yipes!

I totally went against any diet rules today. It was our anniversary, and I just ate WHATEVER. Ick. I can really feel it now! But, it was so yummy, I must say!

I guess they were right

I woke up this AM to a full on flow (so far)...5 days late. I'm never late! Anyway, so, there ya have it. All that build up; hopefully since there was so much activity "before", it won't last long. What terrible timing-today is our Anniversary and I have off work. I popped some good drugs so I'll be bearable today.

Thanks everyone!

Monday, October 27, 2008

Nothing much from the GYN

But to calm down and give it a few more days and see what's up. SORRY...I get a little worried/freaked out when things aren't working like they normally do. It is just so strange to me to have pain and cramping like a period (more I think the colon issues with a period) and not bleed. They didn't seem to think there was anything wrong with missing a period...sometimes that happens. Never to me! So, we'll see how it goes I guess. He wants me to re-test in a few days if I don't start. I don't like all the variables here. If I am pregnant...is it going to hurt like that every time I need to have a bowel movement? If I'm not, where's the blood? I'm pretty tender in my abdominal area...there's got to be some free fluid or something going on in there. But, it's just my body...I have no idea what's going on, right?!?!

Can you tell I'm irritated? And now I'm cramping pretty badly...I'm just going to go to bed and stop pouting. Sorry this is so negative today. :(

Sunday, October 26, 2008

Intense pain tonight

But, still not much bleeding (just spots). What is going on? At this point...I'm a little freaked out. I almost went to the ER it was so bad. It was just after dinner, so, I'm wondering if it was just some bad gas with my already irritated colon situation? I could barely touch my stomach it was so bad. But, now it feels okay. Still tender, but not the intense pain. I will definitely be calling the GYN tomorrow!

Cycle Day 1?

When does "Day 1" really start? I've only just been spotting for the past three days. Nothing at all major. So, when would day 1 start? I didn't think spotting counted as day one? And, when does "spotting" become "light"? I took my temp this morning (about 1.5 hours later than I usually do) and my temp was down from my spike. So, if it was down 1.5 hours LATER than my normal time, I know it was lower earlier...so, I'm not preggers. Just a really light flow...this is really strange!

Friday, October 24, 2008

My Uterus: A Rebel Without A Cause

Started my period today. I guess this sets the stage for a fun weekend/2nd anniversary (which is Tuesday). Hopefully I'm over the worst part by then! Well, MAYBE it won't be bad at all this time! Here's to hoping.

So, on a more (kinda) random note. Has anyone ever heard of this? A friend of mine told me about it-she read about it a book called "A few good eggs". Seems interesting and I thought I'd pass it along for any readers that might find it useful!