I am 35 years old, living with stage IV Endometriosis, possibly adenomyosis and struggled with infertility for almost 4 years. I also struggled with PPD and now struggle with PMDD. I am a mother to a son that was born at 18 weeks and too precious for this earth; and now a mother to a son born in August 2011. By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!





Thursday, May 22, 2008

Bleeding?

So, what should I think about that? I've been crampy and uber nauseated this week...and tonight after I went to the restroom, I noticed I am bleeding. Enough to wear a panty liner. Soooooooooo, why am I bleeding after so long?

I've been off the progesterone 2 days now. Still feel nauseated. I'll try a couple of more days. I don't want to go too long off of it because I think that is help subsiding any of the hot flashes and all that fun stuff.

GI called...wants me to take something for nausea, and come in to see him in 1-2 weeks. We'll see after my GYN appointment next week if I feel like I need to go in. The nurse on my voice mail said he suggested Reglan, which I am NOT trying again (made me feel like jumping off a cliff!), but, she knew I wouldn't want to take that, so, they are suggesting Zofran. I'll look it up and check it out before I call in the morning. I really don't want to take any more meds!

So, again, back to the bleeding...what's up with that?

Tuesday, May 20, 2008

If I had a tail, I'm chasing it....

So, I finally called my OBGYN yesterday to let him know about my persistent nausea. He called back today, and, he is writing this off as possible GI issues. Really? Are you for real? Have you not noticed ANY connection between my GI and GYN issues lately? He said that maybe, possibly, it could be the progesterone. That doesn't make much sense to me-I've been on it for 2 months straight now...why would that be causing the "ill feelings" I've felt in the past 3 weeks. If he wants to chalk it up to side effects, I'd say it's the Lupron. But, I dunno. I've felt this way before...this is a familiar ill. This is not uncharted territory. So, I'll appease the Dr. and lay off the add back for the next few days. I have an appointment with him (not just a nurse) for this possible last shot. I'm not making any decisions about continuing until mid way through #3. Anyway, if his add back therapy theory doesn't pan out, I'll make sure he listens to me next Thursday. Who knows me best? I do, and I am not right in the pelvic area somewhere...and I don't think the GI is going to be able to do anything about it. So, do I just demand an ultrasound for peace of mind on my theory (a cyst)? What would you do? I hate this round and round. I mean, maybe there is some GI issues going on (my stomach also "burns" right below after meals, when I feel like eating)...but, they've always been tied to the GYN. I just have a hard time grasping all of this. I was almost in tears after I got off the phone today...sometimes I just feel like I am talking, and no one hears me.

Thanks for letting me vent. I think I needed it today.

Sunday, May 18, 2008

This weekend

This weekend went pretty well. I'm still waking up nauseated (I'm calling the Dr. tomorrow) and feeling so-so during the day. Eating has become boring once again (nooooooooooooooo, I love food!), but, that really hasn't stopped me from eating. I think that (not knowing what to eat) has a lot to do with that is having been "not allowed" in the kitchen with our recent house work. Hopefully I can get back in there sometime early this week.

I'm having pains on the left and right of my pelvic area. Not constant, but, noticeable. I do not like this at all. :( PLEASE keep your fingers crossed it's not another cyst. It's been one heck of a year-I'm not sure I can mentally handle that right now.

Leg pains too this weekend. My knee is particularly sore tonight. But, I've done a lot of lifting and stooping with yard and house work, so, I'm not surprised.

My neck has been killing me too. This happens often with me, although, it hasn't happened in a while. It has to do with my posture some, and, where I carry my stress (right in my shoulders/neck). I went to PT last year for it because I was getting such terrible headaches. Wonder if I can refer myself. I definitely have been under some stress lately.

Any of you take any anti-depressants/anxiety? Does it help? I used to take anti-anxiety years ago, but, haven't since. I take xanax on and off; the thought of taking another medication kind of sickens me...but at the same time, do I need it? I know some of my anger/fuss has been from the Lupron, but, it has been such a crazy year (especially with house stuff), that, depression right now wouldn't surprise me. I am just tired of feeling like such a bitch!

Friday, May 16, 2008

My week recap

Sorry I've been MIA. We've (finally) had some work done on our house this week and we've been staying with a friend. I'm glad to be home, and chilling. The calm before the storm-we've got a TON to do this weekend to get our home back in shape. It's been a crazy year-but, seems to be moving in the right directions. These updates are going to look great when they finally get done.

ANYWAY, I've been feeling blah still this week. Tummy issues-nausea like back in October. Also, "stomach" pain-right below my rib cage. Heartburn again?! Ugh, I'm on nexium. I'll give both Dr.'s a call next week. I mean, who do I call? Is it endo or a cyst messing me up again (really, this is how it all began), or, is it GI issues on top of this all? Could be side effects? I dunno. Like I've said, I've had these feelings before. I get hungry, but, before I can eat my stomach starts having the pains, and, then I'm not hungry again. Round and round-that's how I feel sometimes.

Pain with BM's-not unusual for me though. I do have adhesions, so, this is not startling. Not awful pain-I just feel full and tender sometimes.

My legs were pretty sore yesterday evening/today. We bowl every Thursday with some friends, and, that must have aggrevated something-that's when the pain started.

Moody still...but, either I'm getting used to it, or, it might be leveling off. Wouldn't that be wonderful?

Hope you all are doing well. I have a goal for next week-get back to exercising. I really was feeling better all around when I was being more active. It's just been so crazy these past few weeks with things to do at the house and such...I just need to make the time. It does the body good. Hopefully I'll be able to make more home cooked meals this week too since we have more mobility in our house. Small steps...

Sunday, May 11, 2008

New Normal?

Still waking up with this "nagging" nausea. It's not altering my daily activities, or, I am trying not to let it-but, it's there, and uncomfortable. Sometimes it feels a little like I waited too long to eat. Other times I can feel it all the way up in my throat. It always comes from my pelvic area-I don't know how to describe me knowing this, I can just feel it. It's the WORST when I first wake up. EXACTLY how it all started, so, at least I am "used" to the idea of these feelings since I've experienced them before. When I eat, it feels better, but, comes back not long after I'm done. It just creates that all over "icky" I've been describing most of the week.

Friday, May 9, 2008

Hoooray for the weekend!

I forgot to post the other day about my 1/2 day hot "flash". I haven't had many hot flashes...most of the time it's just been a warm sensation, not much more. I can't remember what day it was this week-I think Tuesday. Anyway, I woke up hot and stayed that way most of the work day. WOW! Never broke a sweat (I'm not much of a sweater) but man, it was WARM!!! I felt like I was on the beach in Mexico!!!

Still have the "icks". I have this general nauseated feeling on and off. It feels better when I am eating (so I am fooled into continuing), but, about an hour later it returns. I continue to hope maybe this is just nothing, and that this is definitely not a sign of another cyst. Last time I felt this way 2 months later I ended up in a CT scan. Boooooooooooooo!!!

I need to start back exercising. This week and the last have been VERY busy-I don't know where the time has gone! I really think it helped with my symptoms-mostly the HORRID mood swings I continue to have. That was much more regulated with the regular/consistent exercise. I just know I am driving my husband crazy-I'm driving myself crazy!!!

Thursday, May 8, 2008

Icky days

For the past few days I've been having "that feeling" that I had back in October when this all started-early satiety and nausea-just an all over ill feeling. I noticed Monday evening during an Alumni event I was participating in, I got a sharp pain on my right side. These were all my symptoms what seems SO long ago-all relating to the giant cyst on my ovary. I pray that the cyst has NOT returned (I knew before that was one thing that couldn't be stopped by the meds-slowed, but not stopped-if it had already begun to re-grow). I hope we caught it soon enough after surgery. Maybe these are side effects from the 2nd shot? On the label it does say that "nausea/vomiting" are a "common" side effect. So, who knows. If these symptoms persist, I will be asking my OBGYN to take a "peek" at what's going on with an ultrasound at my next visit (scheduled for the end of the month).

I'm exhausted and about to nap-exhaustion has been pretty bad this week, but, I've also been REALLY busy. So, that doesn't really help. I've got my schedule clear next week so I can chill. ::insert sigh of relief here::